SOOOOOooooo how are you all coping with the Christmas let down? Matilda's so discombobulated its freaky... one minute she's bouncing off the walls and crazy with anxiety & the next she's curled in the corner on top of one bean bag and under another... we're calling it the Matilda sandwich.
Matilda & Jovie got bean bags from MIL for Christmas. I love it! They are great!! Matilda loves to roll all over them. Its great for her. She's so sensory seeking atm, its quite scary. Her toe nails on her right foot are nearly all gone from dragging it around.
Okay... I have a big question to ask re: flapping.
Today when I told Matilda she couldn't do something, she started flapping her hands in frustration. Pete said she did it yesterday as well when he asked her to listen to him. I've not noticed it before, or not to this degree. Did anyone elses child start flapping later? Or maybe I'm making a mountain out of a frustrated 4yr old
*maz puts hand up* yes that would be us with late flapping...he was 4 when he did it.....I just held his arms when he did it and after about a year it stopped.
Dont stress about it hon....spectrum kids tend to finish one repetative thing by swapping it with another. Wilhelm went from flapping to holding his ears and rocking. I just go and hold him when he does it and calm him by humming so he can feel the vibrations through my chest.
As for Christmas pinging....maz ****ed to say the least. Have told Jed's family please give gifts on birthdyas for Christmas for Wilhelm because giving him gifts after the fact confusses the **** out of him. (sorry for swearing very very annoyed)...speak to eldest SIL...says she is going to bring them all up on Mateauz birthday next week and is that alright...WTF!!!! I say well actually no and she snaps at me and says WHY? i tell her the above and she snaps again and says its going to cost her to much in postage........**** the postage what about my kid being screwed up for a week cause christmas was back in december not on the 3rd of January!!!! Im so sorry for putting you our Miss L.....didnt mean to make you feel like ****! I am so over non listening and self aposed family members atm its not ****ing funny.
so thats my grrr for the week....and jed wonders why im getting so much sewing done!!!!
Christy I missed your post the other day. I think a lot of Masons hiding under the chairs at kinder was his way of trying to excape when it got too rowdy for him. I knew when he was like that I was in for a trashed bedroom that afternoon too. It drove me nuts because I wanted him to burn it off at kinder and come home and rest but it was the opposite. He's be full of nervous energy and go ballistic. He didn't tantrum though just be destructive. 4 hours is a long time for Matilda to be out of sorts like that
LMAO at Matilda sandwich
We get a bit of flapping but it never really was a big issue for us. When he did it though it was when he was having a tantrum. He is more into eye rolling and doing things with his fingers like pretending they are aeroplanes. That doesn't sound too bad until you see it in action and he does it a LOT.
Arrrgh Maz! Don't ya love it when family don't get it! Even when you've told them over again
Which brings me to a little vent. Mum started going on about the autistic kids she has looked after with work (she works for the council doing homecare for oldies but sometimes does respite afternoons for special needs kids). She keeps comparing Mason to them and going on about how one is 12 and wears a nappy and another strips off all the time and masturbates and as Mason doesn't do that he's not all that bad. Of course I know he's not that bad! Mason seems normal to her. Why do I have to reel off a list of his problems and learning issues for her to justify his diagnosis. I've only told her a dozen times. I think she's got KRAFT albeit selective.
What's KRAFT Sam?? Sounds like my Mum... she likes comparing everyone to Matilda, how Matilda "is not that bad"... I didn't say she was bad, I just have issues to deal with ? ARGH... the lack of understanding.
The flapping got heaps worse today...so much that it was unignorable. If thats a word Lol.
I'm sure I made a post but it must have disappeared :-( We like a few of you had an OK Christmas but we a building to a MAJOR meltdown at the moment. I wrongly assumed that becuase we had already had 5 Christmases that things would be OK well you know what assume did don't you. We had a few tears and not an overly joyful day but at least we didn't have to go anywhere!!!
He has made a new hidey hole, where his desk slides into his bunk bed - don't ask me how he gets in there but he does and it seems to be keeping away the worst of the melt down moments, that along with his new DS.
I don't know what to do with DS at the moment. I am tightening up on the diet as we have been a little lax and I am making up our calender/daily plan as i type :-) but he is not looking for any of the things that used to help - jumping, wall banging etc??? I'm clueless and OT is closed until mid Jan :-(
Also ... haven't mentioned this to anyone else but DH has applied for a new job... which will mean a move of about 1000 km. In the opposite direction of family. I'm not even trying to think about the implications until we find out for sure.
RE family members - OMG! Isn't it funny how when you mention the "a" word to family and friends immediately they start comparing to the "autistic person' down the street blah blah blah. I hate it! My newphew is ASD so you can imagine the comparisons we get from MIL. When we first looked at getting him diagnoised we got the same statement, "nothing wrong with DS, he's nothing like DN" grrr. The only person who was suportive was of course SIL. We have lovely long chats now about our gorgeous boys and relate on sooo many levels (including b*&%$ing about MIL :-)
Arm flapping - didn't start really noticing it until about 4 1/2 and it comes and goes. He also does the finger twiddle where he looks like he is playing a piano in mid air or something.
Love the Matilda sandwich!
have any of you talked about autism/aspergers with your child? We told DS a few months ago and got the book "all cats have aspergers" he was so stoked the other day when I told him the inventer of pokemon is a person who has aspergers :-) He is dreaming big dreams for himself now :-)
You know what we say to Matilda is, "honey you have something in your brain, which makes it confusing when you are dealing with most people who think differently. That is why you get so frustrated with us. Neither of us are "right" or "wrong" just different from each other." So that when she goes towards a melt down I can sometimes help her through it saying "that will hurt your brain, that is why you have to back away...." etc etc...
I hate it when you can see a melt down coming, and there isn't much you can do. Maybe a few stim free days in a row? We've found Matilda is calm after a trip to the beach, so we have been going there a few days a week.
Why do I have to reel off a list of his problems and learning issues for her to justify his diagnosis. I've only told her a dozen times. I think she's got KRAFT albeit selective.
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