Hi Cath,
just wanted to add my support, I am a carrier of deuchune Muscular distrophy, this condition only affects males, and they have a short life span, females carry the defective gene, I can remember at 18 having to go to hospital as part of a research program and was told i had a 1 in 4 chance of having a boy with md. My uncle had MD and sadly passed at 10 due to complications.

I have been very blessed with a happy healthy daughter and son.
Your daughter looks like a beautiful child.

Best wishes for future research on your daughters condition
Tan