Child with Cerebral Palsy

[Trillian]

Hi and welcome to BellyBelly! I know how much you've probably been struggling with this, my sister has a little girl who aquired CP after birth trauma and she will be 2 in January. She is at about the same stage physically as your little boy, but she can talk though. It's certainly been a challenge for my sister and she's been through a lot of ups and downs. She has her in a wonderful early intervention program though and she is seeing some great results. Do you have your little boy in early intervention at all? The playgroup attached to my sisters centre has been a great outlet for her to talk to other mums who have children with CP.

[Jess77]

Yes i have my little boy in a brilliant early intervention centre. He's been there since the start of the year and they've been a great help in getting his development moving along. It's also a nice place to go and feel like part of a group, whereas if i'm with my 'normal' mother's group sometimes i feel like a bit of an outsider (even though the mums are all fantastic there too). I guess nothing in life is certain, but oh the worry. My best wishes for your sister and niece, i'm sure they're very grateful to have your support.

[HotI]

Hi Jess

Has your son had an MRI? Do you see him improving with the therapy?

My niece is two in a couple of weeks and has CP from a birth injury. Knowing the reason for the CP does make it easier in some ways. It is amazing when i see her achieve something that she has to work at a lot harder to do than other kids. Her abilities are more noticeable when i see her with other kids who are running around, especially when they are younger than she is but doing more things.

Have you used signing with your little one? Speech might be a bit harder, and signing can help with their frustration at not being able to be understood.

take care,

Kate

[Gigi]

Jess, which state are you in?

in our state, there is a fantastic charity called NOVITA which is a great support to parents of kids with CP. they provide lots of medical intervention and social support too.

i hope there is an organisation like that in your state.

i don't know what my stepchild (who has CP) would have done without NOVITA.

She is in mainstream schooling with support, right grade for her age. There are so many types of CP, very individual thing.

What a shock this must have been to you, i think the more CP parents you get to speak to and be around, the better, you need people who have been where you are now.

i can't pretend to know what you're going thru, cos i haven't been in your shoes.