James is on his 3rd set of casts now (they change them weekly) and while he HATES having them put on he doesn't seem too bothered by them when they're on. They're quite heavey and solid - he actually enjoys lifting his legs in the air and bringing them down with a crash on the ground
He got his immunizations in his legs still, just higher in his thighs. I think they hurt a bit more because it was higher up (also because he is so skinny) but all was well.
Monica, I hope your little one is feeding better and going well.
Hi Kim,
My dd Chloe was born with club feet and has had the ponsetti treatment. She is now 2. She hated having the casts put on and taken off too, but was always fine when they were on during the week. We found tummy time a bit difficult with her because of the way the casts were, and she stopped rolling after she was cast as well, but started again close to her 1st birthday.
Try not to worry about James' development. Chloe had low muscle tone as well as the club feet, and wasn't expected to walk crawl until 18months and walk until 2 1/2. With a bit of physio and some persistence from dh and I and a lot of support from her childcare, she was sitting 7 months, crawling at 1 and walking at 18 months. It took a lot of patience on our part - we were really disappointed at first and frustrated, but we've come to realise that these things happen in their own time and that doesn't make any difference to who she is.
Chloe is now up to the stage of wearing wom-boots every night for bed, which she will have until she is 4. She is sleeping in her own bed now, but finds it hard to get to sleep with sheets on as her shoes get tangled up in them, so we are sticking to a sleeping bag for now. She has now worked out how to climb out of bed and crawl into our room at 5am with her feet anchored together in her shoes! She walks and runs just like anyone else, and we have started toilet training during the day although we can't do the night time one until she's out of the boots. She may get casts for a few weeks on Monday when she goes in for her check-up (fingers crossed that doesn't happen - I don't know how she'd cope!).
Hope things are going well for you, if you have any questions about what to expect later on just ask.
Thanks for sharing, its always nice to hear others experiences and know that these things just slow the little ones down temporarily People see James' casts and stop me in the supermarket to tell me stories of their little ones who had the casts or point out their much older, perfectly mobile children and tell me they went through the same thing. Its amazing how common it is.
We've actually had good news... James' feet responded so well to casting that they were completely corrected in just 3 weeks! The ortho surgeon said this might suggest that it wasn't truly club feet and we might not need the bracing at all. So we're just going to continue physio and watch what happens. This is an amazing result I hadn't even hoped for!!
I hope Chloe doesn't need the plaster, must get harder the older and more mobile they get. Although they adapt so well, I've seen kids in full leg casts at the ortho clinics who are walking and climbing all over the play equipment there - its pretty amazing. Still, it will be nice for all of you to avoid it so GOOD LUCK
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People see James' casts and stop me in the supermarket to tell me stories of their little ones who had the casts or point out their much older, perfectly mobile children and tell me they went through the same thing. Its amazing how common it is.
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