Coarctation of the Aorta

[DaintreeDream]

It has been confirmed that my DD2 has 'Coarctation of the Aorta' meaning 'Aortic Interruption' has been ruled out, she also has a hole in the lower part of her heart.

I was hoping to find some other parents that have been through the journey of having a newborn with Coarctation of the Aorta.

At this stage I am waiting for my next ultrasound in 7 weeks time (34 weeks) and we will be making a decision as to what we are going to do, meaning if baby looks happy and healthy we will allow here to come into this world when she is ready by VB but if she looks to be doing not so good then she will be arriving at 37-38 weeks by CS.

I really just want to prepare myself as much as possible with what to expect once she is born, I do have alot of knowledge now on the condition from a professional point of veiw but I would really love to get some more knowledge from a parents point of veiw.

The lovlely MistyFying has shared her birth stories which was great to read and get some understanding from a Mum although a little sad at the same time, it would be lovely to read some more.