It has been confirmed that my DD2 has 'Coarctation of the Aorta' meaning 'Aortic Interruption' has been ruled out, she also has a hole in the lower part of her heart.
I was hoping to find some other parents that have been through the journey of having a newborn with Coarctation of the Aorta.
At this stage I am waiting for my next ultrasound in 7 weeks time (34 weeks) and we will be making a decision as to what we are going to do, meaning if baby looks happy and healthy we will allow here to come into this world when she is ready by VB but if she looks to be doing not so good then she will be arriving at 37-38 weeks by CS.
I really just want to prepare myself as much as possible with what to expect once she is born, I do have alot of knowledge now on the condition from a professional point of veiw but I would really love to get some more knowledge from a parents point of veiw.
The lovlely MistyFying has shared her birth stories which was great to read and get some understanding from a Mum although a little sad at the same time, it would be lovely to read some more.
Last edited by DaintreeDream; October 2nd, 2009 at 04:22 PM.
: Re-reading and correcting.
Thankyou everyone . I am pretty sure that I know everything that I need to know but it would still be nice to speak to other parents to see what their journey was like.
just found this thread, wondering how you are going? My LO was diagnosed with aortic stenosis, where the valve of the aorta did not develop correctly, this was only found after birth. She is now 10 wks and is doing well, however we have been told at some stage she will need to have a procedure done to help the blood flow through and relieve pressure from her heart but they cant tell us when that will be. could be in a few months or a few years.
Coarctation of the Aorta
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