Congenital Hydrocephalus (fluid on the brain)

[baby jackson]

Hi,

When I was 36 weeks pregnant my son was diagnosed with ventriculomegaly - 1st and 2nd ventricles enlarged- during an ultrasound that was done as I was measuring 40cms bigger than "normal". I was told he only had a 25-30% chance of being "normal" and could be retarted etc . I had an amnio done which showed no cause for this occuring eg spina bifida, down syndrome or infection CMV or toxoplasmosis. Upon these results I was told 50% chance of being "normal". I had a further two ultrasouns before his birth the when he was born went in the NICU for another u/s and xray. (his head circumference was considered normal) he had another 3 u/s until he was 4 month and the one at 4 months showed his 3rd ventricle also enlarged. We were referred to a neurologist and MRI done at 8 months, he was the diagnosed with hydrocephalus with no obvious cause. The neuroligist has said that he does not believe that this has affected his development ect he looks "normal" and continues to meet his milestones, however ongoing monitoring is required eg head circumference etc... and if need be may need a little extra help learing if at all. Ventricularmegaly / hydrocephalus does not necessarily mean that they will be abnormal and there are ways of draining excess fluid eg shunts should they be required.

Baby Jackson