Good Luck in January!! And with your prescious girl still in SCU.

If you dont mind me asking, did you know before birth that she was ectrodactyly?

I'm sorry, I have so many questions as we really are at the unknown until out boy arrives. I am new to this (and any) forum, so am unsure if I can send a personal message to ask questions.

We have felt very alone in this since we found out about our boy, even though we have been through genetic councilling, we have yet been put in contact with anyone in a similar situation. I would really appreciate keeping in contact, sharing information and contacts if thats ok?

Robyn