things are certainly tough for little felix, yourself and dp right now, big hugs to you. i know only to well the hospital stays with the littlies. when my jessie was sick i was in the hospital with her for 2 wks (and we were in a single room as she had cancer and had to be isolated for fear of infection) it is a lonely and frustrating time. the nasal tube feeding isn't so bad, i know its another tube but if in the end that is what needs to be done then well what do we do. jessie had a nasal gastric tube put in about 2mths before she died, and i had to check each morning her gastric juices (to make sure tube did not dislodge) then feed her a special type of milk - called ensure to basically feed her (the tumour had spread to her facial muscles first and she could not chew) all her medication went down there two - in fact ds jay who was only 18mths at the time used to hold the tube up so i could put everything in it - bless him. sorry to go on but it really just has bought back lots of memories for me.
hopefully by the time you read this you and felix will be home again in your nice enviroment (hopefully with some answers) take it easy and look after yourself and your beautiful little boy. give him a big squeezy hug from me.
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