Hi Nola

We are doing just fine, things have become as normal as they can be for the time being, Felix has adjusted to his oxygen prongs and we are able to just leave the tape on when we go out so as to give him heaps of freedom. He has good day and bad with his eating, we saw the paedrictian on tuesday and we have a month to go to get his weight up (due to our new regime) and if not the nasal tube will be put in.

I got the letter for his lung biopsy and kind of freaked out and got so scared again about it, and wondered whether we were making the right decision, I wish I didn't have to make these decisions for him. We go back to hospital in just over a weeks time (18th April) he'll be in there for 4 days this time.

As for me, I have good days and bad, but I guess you just find the way to cope. I think being in the childrens hospital was good in way because I realise that we are not the ones with the biggest health problems. Day to day Felix is growing and developing SO fast (he's nearly walking) and I thank god that he is happy and laughes at the little stuff.

I think as a parent in this sitution you just try your best to do your best for them, that's all you can do, and hope you make the right decisions along the way, but apart from the additional needs it's really what every parent does everyday. I hate seeing him in pain, and I just hope it is all necessary and we'll come to the end of it really soon!