I just wanted to post an update to share how we are now going.
Firstly thank you for sharing your stories. For a while there my husband and I were feeling very alone, scared and on edge with the thought that our baby boy may not wake up in the mornings from this condition. Your stories made us feel supported. Thank you
Our boy is now 13 months old and absolutely thriving! We were initially told that his floppy windpipe may delay speech development, which he has proven wrong. He now says 30 words or more (mostly parrotting) but definately associates words with the correct object (button, car, nanna, bath, pool etc). He is walking fast and the only time we hear his floppy windpipe is when he is puffed and there is a slight rattling noise.
I was watching some videos of our bubba when he was 2 months old the other day and hearing his struggle to breathe bought back so many emotions, however really made me appreciate and be thankful for how far he has come.
I wish everyone going through a similar condition all of my love and support. There is hope and you are not alone. I'm happy to chat with anyone who needs some advice or support xxxxx
We were initially told that his floppy windpipe may delay speech development, which he has proven wrong. He now says 30 words or more (mostly parrotting) but definately associates words with the correct object (button, car, nanna, bath, pool etc). He is walking fast and the only time we hear his floppy windpipe is when he is puffed and there is a slight rattling noise.
Reply With Quote
Bookmarks