Thanks everyone for your support - Well today has been our first day in the dennis brown bar. Bailey has handled it pretty well, but had a few cry's as has this new frustrated/sad cry which is a little heartbreaking but from what I've read in a few days he'll be back to normal. This afternoon he was giving us this look, we are pretty sure it was a "what have you done to me" glare - very sad, my DH was very upset by it and cried, but it will get easier.

He did a massive poo on the way home from the fitting and even managed to get it on his new brace, I think it was his way of telling us that it was sh*t - hahahaha. I am getting used to nappy changes (although turning him over mid poo change to clean the other side is a bit difficult, especially when its a massive one!!)

The annoying thing is that hardly any of his pants will go over the brace - the waistbands just aren't stretchy enough, so we will have to buy some bigger sizes. Never mind!

The surgeon gave us a bit of a reprieve and we can take it off for 30 mins a day for baths once he is used to it (I think he felt sorry for me, I was practically begging). We go back to the orthotist to check the fit etc in 2 weeks and then every 2-4 weeks, and we see the surgeon again in January. I am hoping that at some point the 23.5 hours will be reduced, we are very lucky to get the bath time, it will make the world of difference.

Bridee - I am wondering if the positioning of the brace is right, it seems to ride up a little and rest against his back, it is cushioned by the nappy but depending on whether Bailey is sitting or laying, sometimes it sits above the cushioned part of the nappy and I am worried it would be uncomfortable for him, sometimes he has let out a little cry - eg when I have put him in the pram or highchair, but not sure if thats why or its just him getting used to it. When the fitting was done this morning it was positioned more behind his bum, does it move around a bit as the babies change position?

Jesska - hope your visit with the Dr went well this arvo and Lahni is out of the harness soon

Naomi