Go Lahni!!!! Well done Jess! You absolutely deserve to be shouting out with your mummy moment! Pretty soon she'll be rolling all over the place!
One week until we find out if DD has progressed enough to come out of the brace. I hate the waiting. I get so anxious on the days leading up to it, my hope is just skyrocketing. Surely, surely its time?!!! This all started for us when DD was seven weeks old and she was 10 months old this week.
It has been a while since I last posted but I do drop in to see how you all are going. DD2 has now been out of her harness for just short of two months. She started rolling a couple of days after she was 'released' and is now commando crawling around the house and getting into all sorts of trouble.
We had our six month innoculations and development check today. DD2 is a little bit behind in that she is not sitting yet but I think that is partly because of the brace. Everything else is looking pretty good so the nurse is not worried yet.
Corelly, best of luck for your upcoming appointment. Fingers crossed for you! The wait before appointments is hard. We go back to our Dr in a month and it is already looming at the back of my mind like a dark cloud.
I'm having my moment now to shout from the rooftops!! DD commando crawled from her bedroom door to the other side of the room in the brace!!!!! I am just so proud of her determination - she was as pleased with herself as you can imagine, once she got to where she wanted to be, she rolled on her back and waved her arms around grinning. For every billion days of this horrid brace, one of these special moments just erases all the bad stuff. She's my little champion.
It's been a really crummy week with other things going on so this is just a perfect moment and I needed to share. Thanks everyone.
Thanks Crosswig for the crossing of fingers for us on Friday. Here's hoping some good luck rubs off on us and the commando crawl is just the beginning of some awesomeness!!
Hi everyone, can I join this group? Am not really sure how it all works!
My youngest daughter was diagnosed with hip dysplasia last week at 8.5 months. She has been really well and crawling for several weeks now. No-one picked up on anything and it was a last minute decision that the GP ordered an xray.
Met with the orthopaedic surgeon yesterday and she has to have a small procedure next week under a GA and then wear a rhino cruiser brace for at least 6 months.
Has anyone else's bub worn this brace? I really don't know much about it all and what to expect so we feel quite nervous.
You all sound like such caring and knowledgeable mums!
Corelly - AWESOME, AWESOME News!! I am soooooo happy for you guys, that would have been one special moment!! I cant wait for Bailey to do that!!
Smarti - welcome. My DS wears a denis brown brace but I have seen the Rhino - hopefully someone will pop in who has experienced it. Its very tough at first when the bubs are diagnosed, hopefully we can be of some support to you through this tough time, if you have any questions or just need to have a vent or a cry (or celebrate like Corelly), pop in at any time so we can help
Thanks Naomi, it was just so good to see. It'll be Bailey's turn next, just wait for it!!!!
Smarti - Welcome to the group. I find the advice here so invaluable and I wouldn't have managed this journey without the wonderful people here. My DD is in the rhino cruiser brace, has been since August. The brace is worn outside her clothes. Things like jeans are uncomfortable for her, shorts are a no go zone. I make sure that she always has either a singlet or a jumpsuit on, so the belly strap doesn't rub on her skin. We also put a baby cot pillow under her legs at night and this seems to make her more comfortable. Overall, it doesn't seem to bother her at all. If your baby can crawl, she'll be able to in the brace, so I'm told. DD can't fit into her highchair unless we remove it, but our pram and car seat were fine. You might need to get an extension strap for the car seat though - you can get it from the RCH's equipment distribution centre. It's the strap that comes up between their legs - needs to be longer to accomodate the brace. There isn't a lot that DD can't do in it, other than crawl on all fours, only because she didn't know how to before she went into it. But the BEST bit that I've found is that we haven't had one leaky nappy since it went on!!!!!! It will be a challenge at first, it is impossible to keep clean, but stay chatting in this group and you'll find a way. Hope that helps.
Well we got the news today that we've been waiting for!!
DD is now brace free all day, and only has to sleep in it for the next three weeks and then it's gone forever!!!!!!!!!!!! And yes, I cried in the surgeon's office!
We had one of those xrays where I had to pull DDs legs straight and it showed that her hip angles are finally right. There is still a little bit of bone growth to be done inside the hip - not sure what it is because it only shows up as a little dot on the xray - but this is grown without the assistance of the brace. Our surgeon said that DD was in the worst 10% category so we need to have checks right up until she's 14, so I hope he doesn't plan to retire anytime soon, but otherwise, right now we are unrestricted on activities and to crack open a bottle of champagne! What a shame I'm still breastfeeding!!!!
I am so thankful to the people in this group that have been so supportive when I've been low and so happy for me when I've been high. Naomi, you have been particularly supportive and I thank you from the bottom of my heart and I know that Bailey will be right really soon.
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