Hey Corelly I am so sorry to hear about your nan, (sorry I havent been online) so glad your dd was good for the service I thnk your right she was there holding her hand
As for Lahni, the only thing that needs improving is the depth of the sockets. So he isn't worried at all.
We go see him again in April and have an X-ray, then again when she is one, then our journey should be over
He also kinda knew that there wouldnt be any improvement over the last 6 weeks.
And I got a real shock today when he told me when he first saw Lahni he was really worried about her hips and was quite sure he would have to do an op on her.... he was very concerned about her, Im so glad he didnt tell me that when he first saw her though, I think I would have fallen apart, seriously! But we are all good now... 20 weeks later we are brace free
Its so good putting her in a dress without putting leggings on her!
I really wanna say thankyou to Naomi for your kind words today on facebook, it really ment a lot to me Chick, thanks again
Awww Shucks Jess - Yaaaaaay!! Awesome mate, as I mentioned on FB its just fantastic - enjoy! Glad to be supportive, I get so much from all the BB gals that I am stoked to hear that I am able to support you girls too!
Corelly - Sleep is over-rated hahahaha! How many more nights in the brace for DD? Do you think once she is brace free at night she will sleep better?
I went and put some tracksuit pants on layby for Bailey in size 1 which he should be this winter - hope we are brace free from May/June as expected otherwise I will be taking them back and get a bigger size LOL. I cant wait to be able to buy pants based on how cute they will look on him, rather than 'can I get them around the brace'. I am too scared to buy him any jeans or cargo pants as yet, as even a bigger size is no good with the brace, where-as at least tracksuit pants are stretchy. I was checking out the Bonds 'roomy' pants that WYSIWYG put me onto - if Bailey is still in his brace over winter I am gonna stock up on those - they should accomodate the brace with ease
Naomi - we've got eight more sleeps of the brace, thank god. Last night she was up FOUR TIMES!!!!! ARRRRRGGGHHHHH. And DH was snoring like a chainsaw so my head is full of the fuzzies today! On another note, I promise you that when Bailey is out of his brace I am going to send you some cargo pants to celebrate!
Jesska - thanks for the kind words for my nan. I don't quite know when its actually going to sink in. Great news on Lahni with her hips. Sometimes I wish that the doctors would tell us what they're thinking, but I agree with you - if my doctor was really worried, I'd prefer to not know. We didn't know that our surgeon believed DD was in the worst 10% until the day the brace came off and that was a good thing. Didn't need to have that on my shoulders.
Hi, everyone. I'm new here...is there room here for a Yankee? (I live in California. ) I was really happy to find this forum as I just found out that my son (Sam, 2 months old today) has to wear a Wheaton-Pavlik Harness for acetabular dysplasia. We are lucky that his displasia is likely very mild (diagnosed with u/s), as I've read many of your stories and know that things could be much more difficult. Because it took so long to get him the right appointments (grrrr...), he'll likely need to wear the brace for several months. He only cried a little when they first put it on him today and he zonked out in the carseat on the way home and is only waking up now, so I'm hopeful it won't disrupt his sleep too much, but I guess time will tell. Like a few of you, I am sad that my days of cuddling with my newborn have so abruptly been cut.
Mainly, though, it's the unweildy-ness of the harness that is stressing me, mostly with regard to nursing him. Has anyone successfully breastfed a baby in a Pavlik harness while laying down in bed? BFing was hard at the beginning (he has a really hard latch) and is only just getting comfortable. I was so excited to successfully nurse him lying down last night (first time) because it meant I'd be able to get a little more sleep (as opposed to the two hours at a time I've had for two months now). Now I think I won't be able to do so because I can't keep his hips in the proper position while laying down.
Any input would be appreciated. Thank you guys SO MUCH for having this forum!
I can breastfeed my daughter lying down - she's in a rhino cruiser brace and she can lay on her side in it. I'm not really familiar with the brace your son is in, but I'm assuming that their legs are all splayed out the same no matter what brace they're in. Maybe try laying a cushion or a small pillow under him to relieve the pressure off his leg? My DD went into her first brace at 7 weeks and I too had just gotten the hang of breastfeeding, only to have to change her position all around once the brace went on. But we're still going now, and she's nearly 11 months old. Good luck with it.
Keep coming in and asking questions, or share your stories and achievements, bad days too. We've all been there, are there and have those days still to come. This group has been a fantastic support for me - I don't know what I'd do without the knowledge and the shared experiences here. I really feel for you having your newborn days cut short. It really really sucks.
Hi Quilla - my DD went into a Denis Browne brace at 7 weeks (which is very similar to Pavlik in positioning I believe) - here are some pics so you can see
She has been out of it since Nov now but just wanted to say that I still managed to feed lying down the whole time she was wearing it. She sort of just twisted her top half and her bottom half stayed flat IYKWIM, in fact she still feeds like that laying down even though brace is off. In the beginning I wedged her up a bit on the opposite side with a pillow, but she didn't seem to need it so stopped. I must say when she first got the brace on not being able to feed lying down was also the thing that worried me the most, but worked fine. So I just started with her laying flat on the bed next to me, me on my side with boob lined up to where mouth would be and then she would just turn her head/chest - she fell asleep fine like this too.
Hi Quilla - welcome! Sorry to hear about your DS, it's very hard at first...
The only other position I could suggest is the way I cuddle my DS in close to me, I recline myself so I am practically laying on my back and he lays across my chest/belly - almost on his tummy but slightly on his side, and snuggles in, the brace doesn't hinder this position (we are in a denis brown brace though), but this position may be one to trf for BF? If it doesn't work for BF it is a good one for getting in those precious skin to skin cuddles
Hi Everyone, what a great discussion group, I wish I had know about it before!
I am expecting my third baby in April and am looking ahead to where is the best hip specialist/clinic in Melbourne (we live in Pakenham so on the East side if possible but open to all suggestions).
I may sound like I am jumping the gun but I have had two breech baby boys, the first had his hip dysplaysia picked up at 3 days and went into a Pavlik harness at 5 days, he was all healed up by 6 weeks. My second son was scanned at 6 days old and he was borderline so I had him in thick nappies and he was OK by his 6 week check.
This baby is a girl and I know that has a higher risk factor, she is not breech but given my previous history (of my babies and me who had a brace on from 4-14 months), I am not leaving anything to chance!
I need to plan ahead as to where I can go for an early check with a specialist, I am planning a homebirth so I will need to go to a paed. first I guess to get a referral and would love to have the details of where to go at hand. I don't have any intention of leaving it for 6 weeks to get her checked as my GP suggested?? Or can my GP just give me a referral straight to the hip specialist.
Sorry for all the questions, my first babies were born in the UK so the system is different.
I am new to this blog, but my 4.5 month old baby, Lucy, got a DB brace on monday for her left hip dysplasia. The doctor/physio and orthotist all told me she would adapt really quickly. She is fine when she is awake but has hardly been sleeping at night. We have had a week of no sleep! She was a brilliant sleeper before. Is this going to settle soon? Has anyone got any suggestions? I have been giving her panadol, have put a pillow under her legs and nothing seems to work. I am going crazy from sleep deprivation.
Would love to tell you that the sleep issue will be fine, but I'll give you hugs instead
We found that after our first initial week of having the brace on, DD settled into a sleep, where she wasn't out all night, but we only had one or two wake ups and this continued throughout much of the time she was in the brace. I wish I had some better news for you. Try to sleep when she does during the day. I know I did on those days where I was fuzzy and bleary eyed and it did make the world of difference.
I found out yesterday at DS' 10 month check up that he may have hip dysplasia. Paed appt is set up for next week.
Im really not finding a whole lot of relevant info out there though, so if someone could send me a link or point me in the right direciton that would be great.
MCHN says he has conflicting symptoms - extreme hypermobility - his hips dont click at all but there is so much movement there, more than normal. When he sits from standing up he does a full split with his left leg for example and can turn both legs out (but does it more with the right)
sh thinks the rolls around his nappy area and thighs arent 'chunky' enough and that his hips are uneven (mine are too though, and I also have the hypermobility).
What should I expect from the paed appt? MCHN mentioned that they would probably order an u/s?
Sorry for the questions its all very confusing. Is it normal for it not to be picked up til this stage?
Pandora - hope all goes well for the appt, keep us posted! Given your DSs age, I reckon they might go for an Xray, as he is older and has more bone formed an Xray would likely give a better picture, I think ultrasounds are more used in younger babes. The paed will likely do a clinical check - eg turn out the hips and check for clicks, look at how even his hips/legs are etc but will be unlikely to confirm much until and xray or ultrasound is done, you will probably be referred to an orthopedic surgeon or specialist after the xray if anything shows up - are you in Melb? I know alot of our thread parents have gone through the RCH. My DSs dysplasia wasn't picked up until 5 months which is quite late, but it may be that IF your DS has dysplasia it is mild which is why none of the obvious signs have been there previously.
Also I highly recommend NOT looking to far around the internet as you will come across info from very mild to very severe cases and it can seriously do your head in if you try to self diagnose. A good page to read might be this one Kids health info for parents
Sleep!!!
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