Karma - we had a wonderful receptionist named Sharon at Mark O'Sullivan's and she would answer anything and even put you in touch with other parents who Mark had treated. Unfortunately, Sharon left but I'm sure he would've made sure that there is someone else there to throw questions at.

DD had an MRI one week after the op, it was apparently the best way to see if everything had worked, and then so many x-rays after that, that I've lost count. I know what you mean about the cancer fear, but I just had to grin and bear it and hope that through this she has earned brownie points in the health department. The MRI didn't take very long at all, if that is some consulation to you. At RCH, they gave DD a sedative which helps them go off to sleep because they need to keep still.

Maybe make that extra appointment just to get some answers and have that piece of mind that you know exactly what is going on. Write everything down before you go, if you do.