Registered User
Hello all,
Just a quick message to say we are taking Harrison to see the orthapedic surgeon tomorrow evening. We hadnt given it much thought until now, but are starting to get really nervous, hoping for good news but not going to walk in too optimistic. We'll let you know how we get on.
Hope everyone is well.
Love Laura x
Registered User
Good luck Laura - we'll be thinking of you and keeping our fingers crossed.
Registered User
Hi all
We've just come home from the hospital - really good news. We actually managed to see the consultant and he is very happy with Harrys hips and said that Harry only needs to wear his brace at night. We need to go back to the hospital in 4 weeks time for an x ray and hopefully Harry may be able to be brace free once we have the results of the x ray! Again, we are not building our hopes up for the next appointment but are really happy with the outcome of todays appointment.
Hope everyone is doing ok xxx
Registered User
Congrats Laura, hope you have a fun time exploring with Harry being harness free.
Good luck with your next appointment
Registered User
Hi all,
Sorry it's taken me so long to write on here but it's been a long two weeks. Hailey had her surgery two weeks ago now, she's in a hip spica now and coping pretty well. The heat is knocking her about a bit, she hasn't worn clothes for several days! We spend alot of time walking in the pram and alternating positions for her, I think we are coping pretty well considering!
I hope you are all well.
Hi Ladies!
Hi Everyone,
It's been quite some time since I've posted and I wanted to check in to see how everyone is doing.
Taylor is doing great. She will actually be two years old tomorrow. She came out of her spica cast (after 3 months time) on Jan. 2nd and straight into a hip abduction brace. After four days in her brace she started crawling and rolling over. After day 6 she started sitting up unassisted and about one month out of her cast (the beginning of February) she started walking again. I suppose it helped that she had done all of this prior to her surgery and casting but I thought that it would take her more time than it did to re-gain the strength. She proved me wrong! She can be out of her brace for only 1 hour max. per day but I love being able to take it off for baths and diaper changes and I have been taking her swimming every week which she loves! I thought it would be good exercise for her left hip which is still pretty stiff and won't abduct out completely. She walks with a limp and drags her leg which makes her lose her balance but hopefully that will improve over time.
On March 31st, we go back to see the orthopedic surgeon and I can say with some confidence, that she will get to come out of her brace completely during the day and only have to wear it during the night when she is sleeping. I am so excited and can hardly wait. I am going back to nursing school (which I was doing pre-diagnosis) on April 9th and it will be great that she can go to daycare and play in the sandbox and with the other kids without her brace on. We will go to see the surgeon every few months for x-rays and check ups and should know by the time she is 3 years old (1 year from now) if she'll need another surgery. I am hoping and praying for the best though!
Anyway, that's it for us. I can't believe she will be two tomorrow. I hope everyone is well and would love to hear from you!
Rachelle
Registered User
Hi everyone.
Just a quick update on Harrison now that he is brace free during the day. Within a few days of having the brace off he managed to roll onto his front and although he hasn't done it again at least we know he can actually do it! Things are so much easier without the brace and it doesn't seem to bother him too much having the brace on at bed time. He has never slepped through the night so I really hope that if he does get the brace off at night then we can aim towards him sleeping all the way through! At the minute he sometimes wakes when he is trying to move his legs and he gets quite upset so we end up feeding him to try and settle him and get him back off to sleep. We are back to the hospital in 2 weeks to have an x ray and hopefully we should have some good news - we'll just have to wait and see. I'll let you all know how we get on. Hope everyone else is all ok.
Love Laura.
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