Hip Dysplaysia Support Group

[Pipsqueak]

Thinking of you tomorrow Nicole and hoping that all goes well.
Pip.

[nicoli]

Hi all

We had our x-ray and went to the ortho surgeon today. While Scarlett's right hip is still OK, he said that it is only improving slowly, so it's another 3 months of night time bracing before seeing him again. I asked what happens if she is still not progressing then and he said we just keep using the brace up until she is 18 months (she is 9 months today) and then the absolute last resort is surgery only if nothing else works. He sounded pretty optimistic that the brace will still do it's job in time. I'll keep my fingers crossed.

Of course I'm a bit disappointed, but the main thing is that Scarlett is still happy and healthy. She has just started wanting to stand up and has been pulling herself up. The doc said that if she wants to stand alot we'll have to try to get her to do it in her brace as it is not good for her to put weight on her legs if they are close together. I know she won't like that much!

Anyway I hope everyone else and their bubs are doing well

Nicole

[Haileys Mum]

Hi All,

Sorry it has been so long since I've been here!, hope you are all going well and bub's are progressing well. Hailey is now in the Rhino cruiser and going well. She is crawling around really well and seems to cope like a "normal" crawling child. We go back to the surgeon in 8 days but not really sure what to expect at all/

2 Questions....

1, Has anyone found a high chair/booster seat/anything! that bubs can fit in in a brace?

2, After surgery did anyone's bub take a long time to move the leg, from groin to knee?

Hopefully I hear from you!

Regards,

[Pipsqueak]

Hi Jo, I haven't got any experience with a brace yet, but I have found a great alternative to use for a high chair. Haven't tried it myself, but saw it on the net, called a Beetle Chair or Go Anywhere Chair (??), and it's made from soft material that slips over the back of a chair and there is a little pouch which holds bub in place. I think that the pouch part unhooks enough to get round a brace or plaster, but just check it out on the net. I think you can buy the Go Anywhere one from Mothers Direct, an online store. Have a look, they may be suitable if your dining chairs are adaptable enough, or perhaps it will also fit over a smaller toddlers chair??
Lucy will have another appointment with the physio next week to talk braces and the time frame to transition into one from her cast. We're about half way through this cast, so almost there assuming all goes well. I'll let you know how it goes.
I hope that all your cherubs are going well
Cheers,
Pip.

[Haileys Mum]

Hi Pip,

Thanks for that, I bought a Dinky Diner off ebay, excellant. Perfect actually and not expensive. The same as what you described. It arrived tuesday and we went to see Haileys surgeon on wed. He is concerned about her leg not moving so he wants her out of the brace and moving as much as possible, and in the pool. She was only in the brace for 6 weeks. He said there is still a risk of hips dislocating again but he is more concerned about the leg not moving. Its one thing after another. So she fits back in a high chair!

Hailey's brace was a rhino cruiser. It was pretty easy actually, went over clothes and was very light.


Hi Nicole,

Hailey has only been out of the brace for 4 days but she is crawling around, well more wiggling, she is completly flatfrom knee to knee. her front parts are on the floor... She tries to lift her tummy and crawl, but doesn't have the strenght in her leg to do it. we weren't told to do physio just get her in the pool asap. Haily does the slipts alot too. She is not able to stand even with us supporting her. But she has been in braces and plaster for 4 months and had surgery. I don't that is fair to expect our babies to be "normal" after what they've gone through. I look and other babies Hailey's age and she is not "normal". My dr says to treat her "normally" too...

Hope everyone is going well

Regards,

[Pipsqueak]

I'm so glad that you found something suitable, hopefully you will find it useful even if not right away! It's so frustrating when it feels like there are everchanging hoops put in front of you...you jump through one, only to have another put there as well! Will it ever end??!!
We also had appointments last week, with the physio. Lucy's cast is going great, and she'll have it off on the 19th June, and go into a brace from there. The brace is light and goes over clothes, sounds like what you've decribed that Hailey had. That's exciting and daunting at the same time. I guess because I'm concerned about Lucy needing to be poked and prodded yet again, and yet again adjust to something new...which can be distressing for all of us! And she is moving around heaps, so of course I'm not wanting her to potentially put any pressure on her hip and cause any set backs...I find it hard sometimes not to worry about everything, when logically I know all I can do is take one day at a time. We'll get there I know!
Hope Hailey's stiffness and movement improves and that all the other precious ones are also doing well.
Warm regard,
Pip.

[bridee]

Hi All,

I hope everyone's little ones are doing ok. DD has a check up in a months time which I'm getting anxious about. History: she was in a pavlik harness from 7 weeks to 5 months, when she came out of it her left hip was deemed normal and her right was mild displacia but had 70% coverage so Dr said she was ok to come out of harness. Anyway shortly after coming out of the harness I heard her right hip clicking so called Dr who said it would just be tendons moving. The clicking did eventually stop after about a month.

We didn't need to see dr until she is 1 which is next month. I'm just so scared that the xray is going to say the right hip isn't ok, I have just noticed this week her skin folders on her legs are no longer the same. I'm sure they were at one stage because I was looking when she first come out of the harness. I will feel so bad if she needs further treatment because I could have potential got it looked at earlier when her hip was clicking (could have insisted Dr review her again). DH is confident everything is ok because she is crawling, standing, taking steps while holding onto the couch but I just can't get it out of mind that all is not ok.

Anyway thanks for reading my little rant, in a months time I guess we will find out.