Hi
Thanks so much for your tips. I loved the coke idea in the trolley, made me smile and bought a tear on at the same time.
Will wait for our appointment to see Othop surgeon and take it from there. Int he meantime have bought her christening forward to the 19th July, so a bit hectic at the moment.
Will be sure to be back soon once i have some more news. Thanks for being so helpful.
Please keep us updated on Hailey also.
Connie
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Hi all, so sorry we haven't been on here for a while, I'm now back to work and feel like there aren't enough hours in the day so don't always get a chance to come on here as often as I'd like to. We are back to the hospital for an x ray tomorrow and we are dreading it to be honest. Things didn't look great last time. Harrison is starting to want to be on his feet more and more now and we are worried this is doing his hip more damage - it's really difficult as he is happy when he is on his feet and as everyone else has said it's always a worry that he wont develop as 'normal' baies do and so we don't want to stop him from standing. He is still wearing the brace at night and he is absolutley fine with this, our worry now is that he will need surgery. Hearing everyone elses stories about their babies surgery is so reassuring as they seem to deal amazingly with things.
Alexandras mum - we all sypathise with you and have an idea of what you are going through. This forum is so helpful and when Harrison was first diagnosed it was so comforting for us so read other peoples stories as we were not aware of anyone else in our area that were in a similar situation. Even 7 months down the line we still find this forum to be an amazing support. It's great to be able to share stories and tips to help us all get through the hard times that we have ahead.
We will let you all know how we get on tomorrow, take care everyone xx
Registered User
Good luck Laura hope you get good results from the x-ray. Our specialist has always said never force DD legs/hips into a position but if she naturally does it then it is ok so if Harrison is wanting to stand, our specialist would say it is ok. But I totally understand your worry.
Georgie has her x-ray next week I just wish it would come to get it out of the way and we know where we are at.
Registered User
Hi all,
Bad news yesterday. Harrison needs to have surgery then go into a cast for 3 months. We always tried to expect the worst but we are absolutely devestated that it has come to this. The consultant said that his hip has not improved at all in the last 3 months and so we need to move on to the next stage of treatment. We have now been referred to another hospital so we are just waiting for news of an appointment with the new consultant. Since we found out I feel like I can't think of anything else, we are so worried about the actual operation and then how he is going to react to waking up with the cast on and of course how our poor little boy will deal with the weeks in the cast. Also he loves bath time and it is absolutley heart breaking to think that he wont be able to have a bath for 3 whole months. I'm now back to work so I'm starting to get worried about how much time off I will need, I just want to be with Harrison all the time but I know that this wont be possible - I'm just in a bit of a state at the minute I think!
Anyway, just wanted to update you all, sorry for ranting, hope everyone else is ok xxxx
Registered User
Laura - I am so sorry to hear your bad new about Harrison. I am crying just reading it. I am feeling the exact same way as you felt before your xray and Scarlett is in her brace at night only as well. I have also gone back to work recently and feel that I never get to spend enough time with Scarlett.
I know you know this, but everything will work out fine. At the moment I'm sure you are just thinking 'why me'? as I'm sure we have all felt. All you want is for Harrison to be healthy, happy and 'normal'. Scarlett is also standing up all the time and she is so delighted with herself that I just can't imagine how she would cope if that were taken away from her. Probably better than me!
Good luck with everything - hopefully Harrison will have his surgery quickly so you can get on with things. Just remember that we are all thinking about you both.
Connie - I am glad you have found some comfort through this forum. I know I would not have come this far without it. Good luck with Alexandra's surgery as well.
Registered User
Hi All,
Just wanted to share our good news, Georgie had her first review since coming out of the harness and everything is good. Dr said it would be very very unlikely anything could go wrong from here as the hip is perfectly positioned so he recommended an x-ray when she is 5 - thats 4 years away!! So Georgie's birthday party on the weekend is a double celebration.
Thank you to everyone on here you have been tremendous support. I will still be popping in to check up with everyone's progress and offer support when needed.
Hello,
Birdee I am soo happy to hear your great news. Thats fantastic!
Laura, I am soooo sorry to hear about Harrison needing surgery, it made me cry. I understand how devestaing this news is for you, and I hope eberything goes really well for you. I have me fingers crossed that it all gets done quickly and as smoothly as it can go. Please keep us updated.
We still have no news on Alexandra's surgery, have an apt to see a doc at the RCH in 2 weeks time, and hope that they will shed some light and answer all our questions for us.
I hope everyone else is doing well too. Big hugs and my thoughts and wiches go out to everyone.
Registered User
Hi all
Tomorrow is our big day - xray and doctor appointment. I am trying not to think too much about it but am of course hoping for the best. I really don't want to contemplate the worst at the moment...
Nicole
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