thread: Hydrocephalus

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  1. #1
    Registered User
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    Mar 2008
    Waterloo, Merseyside, UK
    2,543

    i had hydro as a baby (24 weeks i was born) and i had a shunt fitted. i spent a year in nicu as a baby.
    i am perfectly healthy (apart from probs with adhesions on bowel and abdo)
    so hydro is scary but you babies hopefully will be ok.
    it must be so scary for the babies who are having seizures and stopping breathing...by the age of 1 i had stopped breathing 8 times and sometimes for more than a few minutes.
    as i say iam ok now,no lasting effects.
    sorry to babble on hth xxxxx

  2. #2
    Registered User

    May 2004
    Shepparton
    4,871

    My brother had Hydrocephalus caused by meningitis, not sure how old he was.

    He started getting head aches when he was about 19 and he had to go and get it replaced.... it was a nightmare!! The replacements kept failing and he ended up with some brain damage. Don't know how many times they tinkered with his head, but it was a lot.

    I hope that my contribution isn't too scary, I just wanted to make you aware of what to look out for in in case something goes wrong

    Tanya

  3. #3
    loopy linda Guest

    hi, my boy had secondary hydro due to a large cyst growing inhis brain. he also has a thin front CC and missing rear CC. i would love to chat to you more and i have more stuff i woudl love to talk to you about.

    alos i am in campbelltown! it is great that we not too far away!

    My boy is 17 1/2 months old and by the sounds of your little girl they are both doing well!

    hope to hear from you soon