Hello,
My lil one who is now 2 went through the same thing although he was never diagnosed with hyptonia.
At the age of 4 months I noticed he wasn't very active and would just lay there like a new born. His doctor had reccomended some testing. It started with a CT Scan which came out normal, then came the MRI, that was done when he was about 7 months . That was very frightning cause they had to put him to sleep. The MRI showed he had some kind of lack of oxygen to his brain either while I was pregnate or while he was being delivered. Isaiah has been diagnosed with CVI (Cortical vision impaiment) which causes developmental delays. Isaiah was hospitialized when he was 10 months old and was diagnosed with phnemonia we stayed in the hosptial for 26 days. He wouln't eat and wasnt getting better. After recovering from that he wasnt eating well and had to go into surgery and place a G tube. Still to this day he doesn't have any interest in eating table foods or babyfood. The docs are concerned cause he hasn't weighed over 17lbs. He has seen a nuerologist, GI specialist, he's done genetics testing, an ear specialist, and an Eye specialist. He has Physical, Occupational, Speech, and Hippo therapy. He finally started crawling at the age of 17 months and now he's walking along furniture. He has Braces (AFO"S) on his legs to help support his legs while standing. He has low muscle tone. No one has been able to give me a reason as to why he is so delayed in development besides the lack of oxygen. My whole pregnancy was normal and no complications during delivery.

Good luck with the MRI and its not as bad as it seems.




Hi everyone, my darling little lady Tess is currently 15 months old and at 8 months we took her to Tumbatin Clinic as she wasn't hitting her bubby milestones. No rolling, tummy time, eating solids or weight bearing on her legs. She's been diagnosed with hypotonia (low muscle tone) and severely develomentally delayed and so we started physical therapy.

In those 7 months, by swimming and attending physio, she has learned to sit, move and is now motivated by toys. She is finally eating solids and her little pesonality is coming out. With the exception of the low muscle tone, there is nothing physically wrong with her, although she does seem like a much younger bub than what her real age is.

We are constantly taking her up to the hospital for test after test, because hypotonia is almost always a sympton on some greater syndrome. We've had neurologists, genetecists, eyes, bloods, EEG and the rest, and now they want to do a lumbar puncture to take fluid to run further tests as well an MRI scan for which she will need to be put under.

We've also been told that even after all this probing, we may never get to the bottom of what's causing this!

I am quite worried about teh lumbar puncture and MRI scan part of this. I think she's so litte and I'm just a little nervous about putting her through all of this.

I know we need the answers to help her though.

Has anyone else had similar sorts of tests and were their bubs okay?