Hello , is anyone still out there? We have just come back from hospital with DS who is 8 weeks today. He had a UTI and they've done an ultrasound which shows some kidney dilation. We are having the next test (where they put the dye in the bladder) in six weeks. He will be on bactrim as of next week, when he is off the current lot. I am really upset today as I've found I have to have my other DD tested, and then Im thinking my other DD may need it as well (she is 10). It's all alot to take in.
I've also had a very holistic approach to their upbringing, so the idea of antibiotics is not nice, but I know I will do what I have to.
Ajm mum, Im glad to hear your story.
I just wanted to connect with some people in the same situation, Im feeling a bit depressed at the moment.xo
Hi
My son had a UTI 7 weeks ago that required hospitalisation. (Temp 40). The infection was in his kidney. Ultrasound revealed mildly dilated renal pelvis and dilated ureter on the left side. Right side normal. Discharged after 4 days on keflex for one week (max dose) then bactrim 2ml nocte.
He went in to have DMSA yesterday and was meant to have nuclear medicine cystogram as well as xray cystogram. I wasn't comfortable having two cystograms so didn't have them done until I'd spoken to consultant (registrar had written imaging requests). Consultant called me to say that yes there should only be one cystogram. He is going to review DMSA results and then let me know whether it should be an xray cystogram or nuclear med cystogram.
It isn't pleasant having an ill child but to have an ill child and then find out as a result of the illness that there might be something physically wrong that requires monitoring/ intervention just makes it that bit harder. Especially as there are invasive tests required.
I researched paed journals of urology, urology text books, etc etc and couldn't find anything that might suggest these tests are not necessary. So I am more than willing to have a cystogram performed once I hear from the consultant which one to have (paed consultant)
Anyway I am here if anyone else is going through same thing at moment and would like to talk to someone who understands.
Sorry to hear your son having a dilated kidney. I exactly know how you felt to find out something may be wrong that needs monitoring. We had a shock ourselves when my daughter was diagnosed at 7 weeks, even though I have a duplicated collecting system. I suppose that I was thinking of myself and the fact that my duplicated system didn't bother me at all apart from having had a few UTIs.
Hi Tucs,
We have our MCU (i think that's the test) on monday, so I'll know more after that I hope. It's not fun is it. I dont like the waiting but Im scared of knowing too. Hoping all is ok and manageable.
Hope all is well with you, guess we'll both know more soon xo
PS Is your DS Jaspar? Mine is Jasper!
Theresa, what is a duplicated collective system?
It turns out DS has no reflux at all, but now Im concerned as to why he has dilated kidneys. The report from teh u/s (which was done 10 weeks ago) said mild, but my paed couldn't work out what the prob is as it was not the tube that was dilated, but actually a part of the kidney (the finger pars if that makes any sense). I can't get any answers...
Reply With Quote
Bookmarks