Hi Mum-of-5,

I'm so sorry that you and your gorgeous babies have to go through this
I really dont have any personal experience with MPS III, but I'm doing my last year of a Biomedical Science Degree.... I think I heard MPS III research mentioned last year in metabolic diseases (talking about novel therapies etc). I'm pretty sure that they are beginning a gene therapy trial for MPSIII type A soon (next year or so) but I think it is in France. Still, maybe this is something that you could look into, and if nothing else I hope it gives you some more hope.

Again, I cant give you and you babies enough