Divvy, I am sorry you are going through this.

We are going through a similar thing with Gussy. Gus' plagiocephaly has been graded as "severe" by specialists. He was actually born with right sided plagiocephaly - the nasty side effect of him being trapped down near my cervix without an amniotic sac/fluid for 51/2 wks after my waters broke before he was born.

Gus' head has grown considerably worse in the months since birth. Like Ned, Gus has become very adept at wriggling away from props and bolsters we have used to nest him off the right side. So repositioning is not working (so far) for us. We've had close monitoring of it and have also been seeing a paediatric physio for therapy to try to increase neck mobility etc since he was about 8wks old.

We've also had x-rays to check whether his skull sutures have fused - and so far they seem mostly ok. We're off to the Children's Hospital next week to the cranio-facial clinic to get him assessed for the helmet. Poor little guy!

Will be thinking of you over the next few weeks as you wait for your appointment.