Hi. I know it's a few years since this thread was up, but I was searching for craniostenosis, as it's hereditary in my partners family. His dad and brother have/had it. I'm just curious to know how everything has gone for you?

I'm 6 weeks pregnant and am a little worried. But I guess that I know it's hereditary I can let the Drs know that there's a chance.

Are you coping better and how has everything turned out?