DD - haha isn't it just lovely having a diagnosis of 'sh*t luck', really clears things up!! I know what you mean about the cpap, they tried that in hossy with ella, and the plan was to go home on it.....she went absoulety nuts and was holding her breath, and got so distressed they have never tried it again! nasal prongs do the trick though.It is such a tricky area heart/lung/throat, i had no idea how much everyday activites could be affected, even if the issue seems unrelated. Having Ella has certainly opened my eyes to a lot of things, and made us appreciate everything a lot more.
DD and Sally - defs hear you with the frustration in regards to verbal communication (well lack of a lot of other things too ). We attended a 'Hanen' and 'Makaton; workshop, have you heard of or been to either of those? I found it did help, as Ella was non verbal and couldn't sign until about 2 and a half yrs or so. Even now she says mum, dad, oma, opa, and up. and wont sign anything except for food.
TieTanyan - we are waiting for an MRI, as I think Ella show soooo many signs of CP. She had 2 brain bleeds at 6 days old, grade 3 on one side and grade 2 on the other. She used to have seizures from this, but doesn't anymore and is not on any meds, although still has the 'epilepsy' title as you never really get 'rid' of it. She has right side weakness down her whole body, drools quite a lot for someone with all their teeth, and had/has a lot of feeding and swallowing issues. All of these things of course can be explained by things that have happened to her along the way, but I would just love an official 'diagnosis' I suppose. That really sucks about how much you have been stuffed around with accomodation, you really don't need anything stressing you out, on top of the hospital stay and waiting on results! I hope you get some answers from the MRI
hi all
well diagnosis is in, jethro has a lesion on the right side of his brain, not sure what caused it but he was born with it, thats all they could tell us, he is now walking (YIPPPPPEEEE) so that is one hurdle over with, yes it is CP which we already Knew just nice having something. hope everyone is well and enjoying their long weekend, off to work, chat soon
Jess
). We attended a 'Hanen' and 'Makaton; workshop, have you heard of or been to either of those? I found it did help, as Ella was non verbal and couldn't sign until about 2 and a half yrs or so. Even now she says mum, dad, oma, opa, and up. and wont sign anything except for food.
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That's good news 
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