Hi Cherisse, I'm sorry to hear you are experiencing probs in the eating department. So are we! My son, Gussy, had 9wks with an NG tube after birth. He is now 19months old however has NEVER seemingly enjoyed eating or drinking. In late October last year Gussy completely stopped eating and drinking and to this day still won't consume anything other than a few sips of water. Tis a HUGE HUGE worry for us. We have had an NG tube in since November and that remains our only way of feeding him. We keep offering him food and drinks at mealtimes, but he won't swallow a thing. We have an enormous number of specialists and experts (17 at last count!) helping us but Gussy has them perplexed. I keep wondering whether he would eat if the NG tube wasn't there. I imagine that it can't be comfortable having it dangling down the back of his throat. I am keen to read some helpful replies to your post.
At least we now know we are not alone. Jett had an NG for 8 weeks while he was in NICU, then 4 weeks at the Childrens Hospital, I had been given LIGHT reading on NG tubes as the hospital was more than certain Jett would come home with NG feeding tube, but fortunately the day before discharge he took 100mls from a bottle, HOORAY. It was a slow uphill battle from there at first, but slowly now we are seeing more and more progress. He now will eat off a spoon, but gags and throws up when he has, say for instance, a sandwich, it is like there is too much for him to concerntrate on...(the whole holding, putting to mouth, chewing, swallowing etc) I share your frustration. He has a visit with the speechy and OT this week, so hopefully they can open a few more doors for us, will let you know how all goes, maybe we can help each other
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