Question for those who have been through the hip dysplasia rollercoaster

[Miss.September]

Hi everyone

Just wondering for those out there who have had a baby with hip dysplasia, have you had another child?

Did any children following the baby with hip dysplasia also have it?

I'm starting to get my head around thinking about having another baby sometime in the future. DD was in a brace then had surgery and then brace again from 7 weeks until she was almost 11 months old. Our surgeon said she was in the worst 10% of cases. She is our only child, wasn't prem or breech and we don't know of any family history. I'm scared that if we do have another baby, that we'll be on this rollercoaster all over again.

Just looking for your stories, what convinced you to have another and if they too had HD.

Thanks,

Corelly

[jacksnjeff]

Hi Corelly,

We are in the exact same boat. We have just started trying to conceive number 3 after alot of deliberation. We always wanted 3, but with Isabelle we gave it ALOT of thought and the what if's. We really want another one, but scared to be going through all this again. We have yet to get to the end of our treatment, which also concerns me, but I am also worried with how long it will take to fall pregnant. Ahhhh!!!!

We have been told that our DD's case is hereditary. She also wasn't breech or have any of the other risk factors besides girl. My hubby has one great aunt who had a hip replacement in mid 60's but not sure what for. Our first born girl was totally fine and was also x-rayed when our baby was diagnosed to rule out anything wrong with her hips and hers are perfect. Whilst it is back to front with us, we have one child with it and one child without.

I feel like it is a bit like russian roulette as to what will happen.

All the very best to you and your partner with this hard decision.

Jackie

[butterfly_warrior]

Corelly, not me but a friend of mine.

First child not only had hip dysplasia but club feet - treatment for both took longer as they couldn't optimally treat either condition while trying to correct both. No family history, no risk factors.

Second child - completely fine.

BW

[jaspen]

I also know someone but not well enough to know exact details but her first had hip dysplasia, brace etc. She has not long had her second (about 7 years later) and the second bubs does not have it.

[black_rose]

Dd1 had severe hip dysplasia as she was breech, bum first all through my preg.

Dd2 was fine, she was checked at birth and she saw the same pediatrician checked her at 8 weeks and she got the all clear.

I guess it depends on the circumstances as to what caused the problem, does it run in the family or was it caused in utero as was our case from the way dd was positioned.

[Miss.September]

Thank you for the replies. It is an incredibly difficult decision.

[CharlieBrownGirl]

I was breech and was in a cast/brace for the first few months of my life. My younger Sister had no issues.

Is there a health professional you can speak to, who can advise if there is a genetic relationship with hd?

Sorry to hear that you and your first baby experienced difficulties with hd

[Miss.September]

Thanks for the reply CBG. We've spoken to our surgeon about it with future babies and the consensus is that it is a real possibility, but I think every parent is probably told that. If it is in our family, we don't know it. DH doesn't see his family anymore so it is possible it could've been there somewhere, even with him. They weren't very open with health issues and discussing things like that.

[CharlieBrownGirl]

I've always thought HD was related to birth position and/or birthing. I've never considered it to be genetic

I guess if I was in the same position as you I'd be researching the likelihood of it occurring again. If genetics played a part or if it is something unfortunate that happens and there is no control over it or if the OB/MW can provide birthing suggestions/techniques to reduce the likelihood of it happening again.

Also, if a Chiro can help after birth.

Suppose these are all hypotheticals for me as I've yet to experience a bfp.

[Miss.September]

There are a few factors that can cause it - that the first born is a girl, breech, prem, or family history. DD's only known thing was that she is a girl, so a bit sucky! The other added bonus is for her, that when she has a baby, she has a higher chance of her baby having it too.

So for me, I guess, I just have to keep my fingers crossed that if I have another, it won't happen again.

[HotI]

Hi Corelly

I was born with talipes (club feet) as was one of my siblings, which gives my kids a higher chance of having them. I also have a neuro condition that is also genetic. It can be really difficult to work out whether to try your luck. My little one was a surprise baby, which for me was brilliant, because it took the decision away. I reckon you can get told all different statistics, but it doesn't really change much- you have experienced being the one in whatever number (e.g. 1 in 4 or 1 in 1000), so while a bigger number is reassuring, until your bub is here you still have the feeling/concern that they are probably affected.

Every ultrasound i had during pregnancy, i would ask them to check bubs feet. And that was the second thing we checked out at birth- after the gender. And it still took awhile to believe that her feet were ok. However, now bub is here and we are used to her being here, her chance of inheriting the neuro condition (we won't know for a few years) doesn't seem as important. It's like now we know her, anything that happens we will deal with. Before she was here, i was more concerned about it (if that makes sense).

take care,

Kate

[Miss.September]

CBG - I think all it will mean for you is when you do get that wonderful BFP that when you have the baby maybe an early ultrasound will be the way to go, as it can go undetected for a long time. Thanks for posting though. I like hearing from adults who have had this and all is well. I mean, I know DD will be fine, and is fine, but it's nice to hear other good stories IYKWIM?

Kate07 - Hmmm, liking the idea of a surprise baby! Hehehe. I'm very glad that everything is fine with Daisy's feet. And I think you wrote down how I'm feeling, but haven't been able to get the words together, about knowing the numbers, etc. Thanks.

[CharlieBrownGirl]

There you go. I'm obviously a girl and I was breech. However, no previous family history. Out of the 60 odd cousins and the growing number of great grandchildren I'm the only one to have had HD.

I never knew there is a chance of my baby girl having it. Learn something new every day.

[CharlieBrownGirl]

Yes, all is good with me. I don't remember it at all. Only got Mum's stories and the photos. Oh, and all the stories of the Specialist appointments we went to. I still crawled with the brace and walked at 10 months of age.

The only thing Mum has ensured is regular Chiro appointments - mainly cause that is her thing and has had a bad back since high school and wanted to make sure we didn't have any troubles. Fate got in the way of that for me when I got hit from behind in my car while stopping for incoming traffic

If I were you, I'd go again for another. Tho, I understand how hard it would have been for those 11 months, from what BabyWrangler has gone through with her little Lady.