No my husband had NO idea!
It was a big shock to him. We looked on the foundation website, and my husband and son look nothing like the people with this condition.
They genetisis recons Toby and my husband both have eyes wide apart, big head circumference. Tobys is 97th percentile, but his height and weight are in the 90's as well so I would of thought he was in proportion. Their little toes turns outwards, and a few little other things.
I live in W.A and there are only 7 genetisis here and from what I can tell they liase with eachother. What if I wanted a second opinion? Does anyone know if I could go to a genetic counsellor and post my concerns?