Twin with Cerebral Palsy from TTTS??

**MummyNelly** · April 6th, 2011, 09:33 PM

the best decision we ever made not to terminate, the girls are just gorgeous! Love them so much and no matter what the outcome that wont change. Thanks i do remember you following the journey

She is smiling, making sounds, rolling (when she doesnt complain about being on the ground), holds her head up and is extremely cuddly. We see the specialist in melb in may..

**HotI** · April 7th, 2011, 08:46 AM

My niece aquired brain injury at birth and was on life support for a week. We were given predictions that she was never going to be able to walk or talk and would have severe intellectual disabilities, based on the MRI results. We said our goodbyes, and her life support was turned off. Baby had different plans, and started breathing on her own. She survived the night, and the next and then began feeding.

4 years later, she attends kinder, is walking, never stops talking, and is a gorgeous bright little girl. SHe still has CP, and this is expressed in her walking and talking, but she has far surpassed any of the early predictions.

She has had a lot of early intervention that has definitely helped, and her strong will is definitely on her side.

We don't know what her final abilities will be, but i can say the same about my child who didn't have the same rough start.

take care

**MummyNelly** · April 7th, 2011, 03:10 PM

Wow that's amazing! Babies are alot stronger than we give them credit for.

**Little Chicken** · April 7th, 2011, 03:37 PM

A baby's brain is an absolute miracle. Injuries that would devestate an adult, a baby can cope with remarkably well because their brain's are still 'plastic'. Which part of the brain does what hasn't been set down completely so other parts can take over from the damaged parts quite well. It is fantastic to see and I'm so happy for you that she is doing so well.

**MummyNelly** · August 22nd, 2011, 09:44 PM

Just a quick update- well our twin with the cerebral palsy (later diagnosed as PMG- polymicrogyria) passed away on the 4th august at 9 1/2mths in her sleep. They are putting it down as SIDS. We are devestated.

**krysalyss** · August 22nd, 2011, 09:48 PM

Oh MummyNelly, I am so so sorry for your loss. I know nothing I say at this point can give you comfort but please know we are all thinking of you.

**Trillian** · August 22nd, 2011, 09:51 PM

Oh Nelly no

I'm truly sorry for the loss of your sweet little girl

**LionsandBears** · August 22nd, 2011, 09:52 PM

MN

no words can express the grief of losing a child. I am so sorry for your loss. I know you and your family must be devastated.

Sending strength and peace to help you through.