Hi mY name is sally and my 2 children have Currarino Syndrome. I am looking for someone in Australia that also has this condition to see what treatment they might be recieving and where. Cheers sally
hi sally
i just wanted to touch base and say that i have 3 children with currarino syndrome and i am happy for you to contact me at any time to discuss anything you would like.
I have not met anyone else with children that have this condition so it would be nice to talk with someone that understands exactly what it is that im talking about.
looking forward to hearing from you