My daughter used to get these EVERY time she'd get a temp, often the temp would only register after the fit, because it's the sudden shift in temp that sets them off, not the high temp itself, if that makes sense. With her low muscle tone the fit was not at all benign as she doesn't have the same gag reflex to protect her airway from the eventual vomiting. I've had to do ERR a number of times, I've just been lucky to catch it before it got worse... After five years of having to watch her like a hawk every time she seemed a little off, our Osteopath put her on a preGABA supplement. GABA (gamma-Aminobutyric acid) is one of the amino acids that lubricates the brain and stops the synapses from over-firing - It works a lot like oil does in a car engine. You can imagine how the gears in a car engine would grind and spark without oil, same thing happens in the brain, hence the fit from overload.
Anyway, since starting her preGABA supplement DD hasn't had a fit. One day I forgot to give her her supplement and she got a chill that morning because the heater had broken (I was busy trying to fix it, hence the reason I forgot to give it to her) and she started to get a distinctive smell on her breath. I knew she would fit if I didn't get something into her to control the impending temp that would be on it's way. The research I've done since being put on the supplement shows that Febrile Convulsions are connected to two synapses' that are responsible for GABA distribution in the brain, which would explain a lot. Often needing a GABA supplement is connected with malabsorbtion in the gut. You ever wonder why they say if your sick to have chicken broth and why that would work? The goodies in the marrow of the chicken bone feed good bacteria - Good bacteria process toxins in the gut and also increase how much nutrients are absorbed from food - those vitamins etc. help the body fight the infection. I've since worked out that is why my DD gets a smell on her breath; it's a sign that she is going to fit because it is indication of an imbalance in her gut which is stopping her body from absorbing what she needs in order to make to make the GABA amino acid, without the GABA she fits because the brain doesn't have enough oil to deal with the rev of a rising temp.
Last edited by Yeddi; November 11th, 2010 at 12:58 PM.
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