GL Just Me, I hope you get some answers hun. Let me know how you go!
I went to gymbaroo today and mentioned what my concerns were to the two ladies running it, and they both said that usually it's the gut feeling that we should follow not what the docs are saying.
Just me, it could be a sensory thing. The running in circles... he might be trying to fill a sensory need?
MrsB, an OT might be a good place to start. They can help with assessments. Same for you Just me.. ask your pead to refer you to a ot. I'm on my tablet thingy at the moment but look me up on facebook fiona fuller if I don't already have you on my list lol, I can never remember real names and bb user names. I will link you to a secret fb page that you may find useful :-)
Paed appointment went well today. Obviously we don't have any answers either way because she said she can't say that DS1 does have Aspergers but she can't rule it out either. She said he is certainly showing some concerning behaviours.
She took a list of concerning behaviour, talked with DS1 for a bit and did a general health check and then wrote out heaps of referrals. She was actually really good and we are very happy with her as a paed.
So we have some appointments with a psychologist, he is seeing a speech therapist and having a hearing test. We also have another appointment with her to go over some more stuff.
I am a bit confused about some of the funding stuff she talked about but I have posted another thread about that. Thought I would come back and update in here too
Hey Just Me! Sorry I read your post and meant to reply but I got side tracked! I'm glad the app. went well for you and your paed sounds great. Hopefully you can get some answers now with the referrals for the specific appointments she's given you. Fingers and toes crossed for a good outcome. Thanks heaps for the update hun!
Thanks for thinking of us and asking after us. It's been really busy here. DS turned 1, had a burst ear drum, we moved house (and are still unpacking and preparing the old for sale), and had numerous community health appointments for DS.
Paed appointment went well. He looked at DH and I and then at DS and concluded that we're just a family with bigger heads and when in comparison with DS's body, it's probably too big for him to manage. He's referred DS for a head ultrasound just to be sure there is nothing underlying but he seemed not too worried about it all.
The physio we've accessed through community health services has diagnosed him with low muscle tone, so we're on regular physio appointments and an exercise program at home. We have a referral to Occupational Therapy next month as low muscle tone can impact on walking with rolled ankles etc, or fine motor skill activities, though DS's fine motor skills seem really good.
We had a 12month age appropriate assessment with the MCHN and that went well. She had a child with low muscle tone so could relate and gave us some insights as to what we may be in for. She made a comment that has stuck with me though. She said we'd done really well in reaching out for help because that requires us to admit to ourselves that something may not be quite right, which no parent really want to think about their child. This was true for me. For a few months I was thinking (telling others) that DS would do things in his own time despite that little twinge in my stomach. It was a huge step for me to admit that things needed to be looked into. I still find it hard to tell people with children of a similar age, and the grandparents interstate, that he's not sitting etc and I feel that reflects on my parenting, but he's one very loved little man and we'll get there in the end.
I know I'm lucky given it's only a minor thing compared to what others deal with, and it's certainly given me a new appreciation of how challenging being a parent of a child with extra needs can be.
Hi CeCe, thanks so much for your update hun! Sounds like your concerns are being addressed and that's great hun. I feel like reaching across the screen and giving you the biggest hug, as that's exactly how I feel about DS in terms of telling people of what he is up to, and trying to think of excuses why he is still not walking! I used to make up these silly excuses like he's top heavy and is finding balancing himself hard! lol. I am so glad that you've popped back in here, because I was actually thinking the same thing the other day, that maybe DS has poor muscle tone too? He absolutely hated tummy time when he was little, so I kind of assumed he'd be late with most things as his core muscles were not that great. I will be asking the MCHN the same questions when we go in 5 weeks time for his 18 month check up.
Hun, please don't think that whatever your DS is or isn't doing is a bad reflection of your parenting. That's rubbish and I know you are doing an absolute best job in the world. I think it's very true that as a parent it's very hard to even acknowledge our deepest fears that there might be a problem with our child. I personally found it extremely difficult to even entertain the idea that my beautiful precious DS might need some help. After all he is my perfect little man! Perhaps he just needs a bit of guidance and help to get him back on track to where he should be. Please keep me updated hun, I hope with a bit of intervention out little men will get there in the end! Big hugs
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