It was my birthday and i was 22 weeks 6 days - it was late at night when i threw up - didnt think much of it and went to bed. little did i relize it was the begining of a hard 2 weeks. the next day (23 weeks) i was really sick. a virus had been going around town and i through i had picked it up. by 7pm i could not even keep water down and i had bad chest pain. i went to hospital where i was put on a drip given a pink lady (milanta and anastetic) and some maxalon and eventually sent home. i was bearly eatting through the week and my DS came down sick that thursday so was looking after us both. DH (had been made redundent 2 weeks earlier) had been offered 1 weeks worth of work starting saturday through to the following sunday leaving home at 6.30 and getting back 21.30.......friday night i ended up in hospital again..they were so busy it took 2 hours to be seen and i just agreed to the pink lady so i could go home. saturday morning i went to the chemist to try some zantac for the chest pain. he refused to sell me any until i had seen a doctor (i will be thanking him the next time i see him). so off i went to the doctor and was seen straight away. my doctor advised me it was reflux (which i knew it wasnt but just wanted some releaif from the chest pain) she wrote me lettle to take to the hospital with me if i went again and ordered blood tests. went back to the chemist and was given zantac.
On sunday i decided to call my inlaws to help look after DS (whos 7) as i was still not well. was alternating between zantac and panadole every 6 hours. they agreed to come down to help out. Monday i went to pathology and had my bloods taken. monday afternoon my father inlaw arrived and i even ate a little bit of dinner - well that was a mistake up it came and with in 1 hour i was in hospital with chest pain. gave the staff my letter and was again treated for GORD. but this time i was admited. spent the whole night in pain was given milanta milk and ice.
tuesday - 24 weeks - spent the day in hospital OB stopped by to check on me and i advised him of the blood tests...was upset i had not had them done at hospital as they would now have to chase them. at 14.30 was advised the results had come back in and they wanted to transport me to a larger hospital...got husband to bring son straight in so i could say goodbye. hubby was sent home to pack a bag for me was not told much (or maybe i dont remember it) was put on the trolly and wheeled out. told them hubby was coming with a bag for me and could they wait and was advised no - had to be moved asap...hubby got there just as they loaded me into the ambulance. i waved goodbye thinking i would see them the next day.
18.00 arrived at the hospital and was taken to delivery suite and had doctors nurses midwives and NICU leader arrive to talk to me - they advised me they needed to remove my son tonight and they were prepairing a theater. i was shocked they explained i had liver problems and hemagolbin problems and that removing my baby was the only way to stop it. i rang DH and told him to come straight down that they were taking my baby. it was a long hour later that they came back in and advised me i had stablized and that they would keep him inside of me if i didnt get worse. hubby made it to me and we both breathed a sigh of releif. the next day i was taken to fetal monitoring and given an ultra sound. My son was mesuring 2 weeks behind...had a hole in his heart....and that my placenta was under strain...he was also mesuring 480grams i was told because he was under 500grams if he was to be born there was a change he would not make it. i was moved to antinatal and had bloods taken every 6 hours and monitored every 4 hours. they said it looked like i had HELLP syndrome but with my BP being normal i was ok if my bloods didnt get worse. In fact by friday i had packed up my bags and was waiting on a discharge letter when i was advised i was not to be leaving. my bloods had crashed again. the chest pains returned (turned out it was pain from my liver) and i was back on the pain relief.
Monday - 24 weeks 6 days - sitting in the tea room with all the other long time antinatal paitents we are talking about why each of us were there how long etc when my inlaws came by to visit (didnt know at this point my BP had started to go up) - we went back to my room and had a chat - wasnt feeling sick was in every scence fine walking comunicating everything when all the doctors poured into my room - it was bad....11.30....we are going to have to remove your baby at 14.30 you will need a platlet transfusion before you go in. you will be under general anastetic as a epidural could cause a blood clot. i called my husband straight away and told him to move as he had to pick up our son on the way and it would take 2 hours to get to me. i was moved to delivery and blood transfusion started. hubby gets to me 10 minutes before they take me away. hubby leans over me and i whisper to him "if i dont make it make sure DS knows i love him and that i am sorry" hubby says not to stress but he had missed all the talks so i dont think he relised how serious it was. DH and MIL walk with me to surgury and they wait for our son. i am wheeled into the operating room and prepaired i think its about 14.30-15.00 and i have a mask put over my face and asked to breath. i can breath in but cant breath out and start to stuggle - they do an ajustment and i can breath. they want me awake until the last moment so baby doesnt get to much anastetic. at last i was told to take 3 deep breaths and i smell something horrible before i fall asleep.
i wake to a huge pain i dont know if i wake straight away or drop in and out but i eventually wake long enough for them to move me to my own room in delivery at 20.00 (was told it would only take 2 hours - dont know what happened for 4 hours) hubby advised me jake made it 520grams and is fighting strong. i see a picture of him on DH phone and am told i will see him the next day. i have a midwife in with me for the whole night monitoring me. DH sleeps on the bed next to me as i doze in and out
Wed - i see jake for the first time he is so tiny and so perfect. i get to see him a second time i cant believe his so tiny. i am moved out of my single room and into a double (still in delivery). hubby cant stay with me and my room mate is very rude. the next day my room mate is tranfered and i am left to myself - my cathada is supost to be reoved as well as my drain but it takes upto an hour for anyone to see me when i buzz for help. DH and my friend get very angry and we again request to be moved (am told there is no room in post natal or antinatal for me and i later find out i am in the delivery exam room) i eventually have it all removed and i walk to NICU to see my son. I spend another night by myself and end up seeing a social worker the next day to try and get me moved again told there is no room. i am sore and tired and very angry i agree to be discharged and am moved to Ronald Mcdonald house i know i still should be in hospital but it was a night mare i needed to escape. I apparently had a very rare form of HELLP syndrome. i still have to have a blood test to be given the all clear which i hope to get this week my son Jake Thomas was born 24 weeks 6 days weight 520grams. his a fighter and has been doing well even gaining 19 grams from birth weight within 3 days. he takes 1ml of ebm every 4 hours and i know in 15 weeks i will be taking him home