thread: My "quirky" daughter

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  1. #1
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Talking My "quirky" daughter

    Okay, so you've all been there with my vents, my crying, my frustration with Matilda. You have all supported me in ways I truely needed and will continue to need over time.

    SO its my pleasure to share some good news with you all. Please join in our celebrations tonight.

    Matilda today had a developmental assessment from a developmental paediatrician, and had an auditory assessment.

    She passed auditory with no hearing issues. WOOT!!!!

    The paediatrician was extremely thorough, listened to everything I had to say & wrote everything down. Discussed the notes from a year ago. Watched Matilda, spoke to Matilda. Did some tests on Matilda stacking, and developmental assessments. Then she said the magic words, "Your daughter is doing really well, she is not on the Autisic Spectrum at this point in time, she does not have ADD, ADHD. She is definately quirky, and has sensory issues, but she is not Autistic & she is too young to identify her with Aspergers, but I don't think she would be there at all".

    The thing is, I've been researching all this stuff for a while. Since the milk allergy we have seen huge improvements in her behaviour and development. Sure, her sensory issues are still there. No one is denying that, but at least its just the sensory issues. I knew it wasn't the others, but you get one person mention Autism and it sticks in your head, and its a horrible label. Its such a huge spectrum, you could label me autistic if you tried....

    So my instincts going in today were yelling at me "She's not autistic, its sensory" and I came away with the confidence in my instincts. So the next assessments are in September for OT, Speech Pathology and Physio. These are the ones that will be more towards what is going on with Matilda. OT's generally deal with the sensory stuff so thats great.

  2. #2
    Registered User

    Dec 2007
    Sunny Qld
    14,682

    Wooohoo!!! Way to go Matilda...
    Just think how interesting she will be as the years go on... lots of stories to tell at her 21st birthday party.

    You handle her so well Christy - give yourself a huge and a

  3. #3
    Registered User

    Aug 2006
    Perth, WA
    1,240

    That's wonderful news Christy!

    So thrilled that Matilda got such a thorough assessment and the good news of no major diagnosis.

    Wonderful!

    And the good news about sensory issues, is that a lot can be done to help her.

    Good luck with the next round of assessments!

  4. #4

    Dec 2005
    not with crazy people
    8,023

    **** - honey my turn for tears!!!!!

    YOU GO MATILDA HONEY!!!!!!!!

    Its amazing how many specialist dismiss the mothers 'voice' of rightness isnt it! Honey babe...I am so over the moon for you its not funny.
    Thank god you had someone listen to YOU!!!!! Arghhhhhhhhhh Im SO HAPPY for you guys!!!!!!!

    LIfe wont be as frustrating and stressful now....

  5. #5
    Registered User

    Dec 2005
    5,951

    That's fantastic news! I'm already having a drink to celebrate Mateauz, so while I'm there, I'll drink for you too! Good luck for the next lot of assessments.

  6. #6
    Life Subscriber

    Jul 2006
    Brisbane
    6,683

    This is really great news Christy. I'll bet you've never been so happy to hear the word "quirky" in your whole life LOL!!

    She is a very special person Christy and it's so good that you have been able to eliminate the effects dairy were having on her so early, so that an accurate assessment could be done. You do a fantastic job with your girls and I am so, so glad that you finally have the good news you deserve.

  7. #7
    Administrator
    Add Rouge on Facebook

    Jun 2003
    Ubiquity
    9,922

    All I can say is Quirky is cool, way cool WAHOOOOO!