Thank you so much for shraing your experiences
I have just come back from the GP, DS was asleep so the gp was able to see first hand exactly how badly his breathing iS.
Acording to him, nothing is going to improve it bar surgery.

He is now advising us to go private, to have the op done ASAP.

Anyone gone that way? or have any idea how much it will cost? we do not have PHI, I have no idea how much, neither did the GP.

Or even any idea on how we can find out?
Thank you