thread: 3 yo ds needs tonsilectomy/adenoids removed, hints? suggestions?

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  1. #1
    Registered User

    Mar 2007
    Melbourne
    4,031

    Just adding that in case you were not aware, you can claim out of pocket eligible (this would be classed as eligible) medical expenses on tax. Once you hit $2000 out of pocket expenses, you can then claim 20c in the dollar after that of out of pocket medical expenses. I think this is the right amounts. You can go to the ATO website and get a better idea.
    This would mean all out of pocket medical expenses for all the family once you hit the threshold.

  2. #2
    BellyBelly Life Subscriber

    Feb 2006
    melbourne
    11,462

    DD2 last op, adenoids and grommets was $2241 all up

  3. #3
    Registered User
    Add Feijoa Mum on Facebook

    Jul 2008
    Forest Lake - Brisbane
    919

    My DS4 is due to have his out very soon but also get grommets put in and have biopsies taken on his infected nodes. I am not looking forward to it.
    His has an aponea too, is a mouth breather, is very skinny and goes down very fast each time he gets sick. All his nasal,ear passages are blocked and narrowed because nothing can drain away due to his massive tonsils and adenoids - hence the enlarged and infected lymph nodes he has in his neck.
    I am worried for him because although he has a very high pain threshold, history has told him not eating or drinking means it doesnt hurt but it also means he prolongs his recovery.
    I wonder if they will set him up with an icecream IV

  4. #4
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    Aug 2007
    adelaide
    1,989

    ah so, huuuge update ahead!

    On Saturday night, DS woke up coughing so much he chucked up a few times, then proceeded to choke and go blue! he recovered pretty well, we sat up watching him sleep and trying to get him in a stable breathing position.
    Sunday morning he was his usual self, the at about midday he spiked a fever and was just flat.
    Knowing he had a pretty limited air way as it was, him getting sick was not what I wanted!! DP and I took him straight to emergency at the FMC. due to us having been there on Thursday we were seen too pretty quickly, no one took us very seriously so I put him to sleep, man did that wake them up!
    we were admitted to the paed ward almost straight away (well..after they put an IV line in (oh my god did that suck! but I think I was more upset than J was) then put saline, AB's and steroids thu it!)
    The nurses put him on an oximeter, he was having desats every minute or so, they freaked out and moved him closer where they could keep an eye on him, then even that wasnt good enough so they had a nurse just to sit next to him to move his position and keep the oxygen wafting on his face.
    We were then informed that they were not confident that they could deal with his condition, so at midnight we were transferred to the PICU at the WCH, Jacob was pretty excited, we got to ride in an ambulance!
    The staff at the PICU were so fantastic, I stayed the night with DS, thinking we would be able to go home the next day, but not so.
    The hardest thing about this whole thing is that he really doesnt look unwell, no one will believe he is ill! but then they see him at night, asleep, struggling for breath and his oxygen levels dropping down lower and lower, yeah then they sit up and take notice!
    The next morning we were transferred to a paed ward, which is where we still are now... he basically just needs to be on oxygen to be able to breathe at night. It is so scary hearing that alarm go off and knowing my baby isnt getting enough air to braethe
    The steroids have been stopped now, his tonsils have shrunk from a grade 4 (touching in 3-4 places) to now a grade 3 +, he is still on AB's and they will not operate until all infection is cleared up (theyre saying around 4 weeks)
    Tonight we have an oximetry study happening to gauge exactly how much his oxygen needs are, the docs are now saying that best case scenario we will go home on Monday with oxygen for him to use at home until the surgery.

    I am so tired, so freaked out, so worried...we are in the best place for him now, but it is very hard with him being an active 3 yo during the day..will be back to update later

  5. #5
    Registered User

    Dec 2006
    In my own private paradise
    15,272

    massive hugs Beck - this is just so scary! Hoping your little man clears up with the ab's asap so that at least you are able to relax for a little while until his surgery

  6. #6
    Registered User

    Jul 2007
    melb
    8,498

    Hugs hun how scary for you, I hope he is better asap and get them removed very soon xoxo

  7. #7
    BellyBelly Member

    May 2007
    ACT
    523

    That sounds really scary. Glad you are getting the care needed and hope your DS responds quickly to the AB's.

  8. #8
    Registered User
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    Aug 2007
    adelaide
    1,989

    we are at home! but only for a little bit, have been granted day leave, but have to go back to hospital at night for oxygen.