Nicole I am unable to give you any information, but wanted to say how sorry I am your little one is going through this. Sending loads of your way, and good news comes your way.
I think hydrocephalus is pretty rare, isn't it? Maybe there are no other members at the moment who have a child with that condition. In general people won't reply unless they know the answer to your question.
I'm sorry to say that I have no idea either. I'm sure this is something you can ask your doctor.
Have you tried looking for an online support group for people with hydrocephalus, or parents of children with the condition? I bet there's at least one out there, and maybe they can help with advice.
Bookmarks