No personal experience, but 2 bubs out of the 10 in my mothers group had it.
They were both in braces, both were diagnosed at birth.
One was in the brace for 9 weeks, one was in it for about 3.5months,
They struggled with bathing, and dressing their little girls. As we had late April bubs, dresses weren't an option as it was getting quite cool, so jumpsuits etc were difficult but with the weather warming up, you shouldn't have that problem.
With bathing, they initially were doing sponge baths, so the brace wasn't off for too long, but in the end went back to quick normal baths.
One of the mums, eldest daughter had it also, but it wasn't picked up until 7+months, and it was a lot worse than this one, so she was in the brace for a lot longer.
They had regular checks with the ortho, physio and scans.
They both said, it was completely overwhelming to begin with, were upset as you no doubt are, but once they got used it, it was ok and manageable.
Big big hugs!
Sorry I'm not much help!
Sent from my iPad using Tapatalk
Last edited by sahbear; November 2nd, 2011 at 10:41 AM.
Bookmarks