Hi Nadine216
Everybody says how do you mange , but honestly I don't even see it as a lot except when it comes time to get them all organised for a function, especially with having four girls who all want their hair pretty and jewellery on! I also came from a family of 7 so it just feels normal to me.
Good luck with her 6mth check coming up. Wow at the 5kg mark she must be so petite! My fella is a chunk!

Hi Captain
Nah its cool i don't mind answering what i can. His paed says that he will never be an extreme athlete ( i can handle that) but he will always need to do some form of exercise or sport (pref non contact) as if he doesn't stay active he will be very likely to become obese. Especially as his fathers side have bigger build anyway. He has certainly improved a lot since we started, i hadn't actually thought bout starting a diary but now i think i shall. Thanks for the idea.
AS for your DD, thanks for sharing and it may not be the same thing but she still has a lot to go through just the same. It can be very taxing on them and you. I think its awesome that she now has 40% usage now. Well done, i can imagine the time and effort put into achieving that!

Hi Mikenzeesmum

I have checked out what you said about the hypertonia, but so far everything that i have read is not like our DS at all. I shall keep investigating it and i shall ask his physio when he goes back to see her in a couple of weeks. It is definately not a word they have used thus far though. This is one thing that i have found - Hypertonia is a condition marked by an abnormal increase in the tightness of muscle tone and a reduced ability of a muscle to stretch (i.e. an increased stiffness). It is generally accompanied by (increased) spasticity of the particular muscles. I am not sure if this is what your DD has but our DS muscles don't have an increased tightness or a reduced ability to stretch.
I am really curious to get more info now though.
Thanks for your info i will certainly be looking into it.

Hope everyone has had a great day. mine was yuk i got no sleep last night at all (Dh was on night shift and mitchie was really sick) then went to docs today and he has the start of croup. Anyway looks like tonight won't be any better.
Cya