hypospadia but certain he also has another condition chordee aswell

[ashie]

it was such a shock to see my poor little man when he was first born, his poor doodie was swollen (but we reassured it was not sore just swelling like most kids get) and that he has hypospadias. i had never heard of it before, nor do i know exactly what needs to be done to be repaired. after all the swelling has gone down i have noticed his end is quite wide and his doodie isnt quite straight IYKWIM, and found out he may also have another condition called chordee which is common with hypospadias. his foreskin doesnt completely cover all so some is exposed and the hole is underneath where usually a hypospadia hole is.
i am just wondering i know surgery wont be until he's atleast 6 months old, but want to hear from others who have gone through the same thing with their son, i am so scared for him, what is exactly involved and how they correct it. how long does it take for them to recover, and i have heard some cases need more than one surgery to fit completely how many does it take usually to fix. and what should i be asking my ob and the surgeon besides what i am asking now.
i really hope i can hear more from others, it literally makes us feel sick knowing he needs surgery but know that it will make him all better its just he's our baby and no one wishes to see their kids go through any hospital stay.

[Trillian]

I have no experience with this personally, but I just wanted to say that I'm sure your little fella will be fine I hope that someone else sees this who may be able to give you some advice on it.

[ashie]

thanks its very hard to think of him going into surgery, i have had one kid in hospital once before cause he couldnt breathe and they rushed him off with dh and i was left not knowing what was going on only to fill out paperwork, and it really scared the hell out of me. so now i am very over protective and very clingy to my boys, i'm just a big sook lol!

[ashie]

my ob thinks he may have a case of chordee (his end seems wider than usual) but we see the surgeon on the 10th may so hopefully alot of answers and confirmation of it all. im hoping for sooner rather than later for his op (if he is like ds2 he'll want to play with his winky all day lol, if he is like ds1 who never touches his well then later wont be a problem). how many surgerys do they need only one or is it 2 at least ob told me he will have a tube put in?

[Mum2Romone]

My DS had this when born too, its weird it happens it 1 in every 300 boys born, my paedeatrician gave us alot of information when we went to see him.
The op cant be done until 6 months as its under general anathetic ( they have to incubate them)

DS coped fine with the op but im not 100% sure they did much... I mean he has a slight bend, which they dont fix apprently and he had half a foreskin so they made that even by removing the top half.
He had his two urethra openings close together , only one with wee coming out , it looked like a spider bite in relations to the distance between the two hole.... hard to explain.

They stitched one hole and then just left the urine to bypass the stitch and come out the top one .... It is stilll scared and reddish at times but i guess we will only tell as he gets older and it grows more. apparently the bend can become less noticable and the scarring should go away in time too. DS is two and a half now and i think its ok i cant really ever get a look, sometimes i think maybe he is weeing out of the wrong one still but its just the scar tissue there and he wees straight now.... That was a suprise, changing nappies before the op and having him wee to the right ....lol

He will be ok, Huge hugs, i felt sick to my stomach too but tbh the worst part in the actual anathestic, they get upset when they wake up with a sore throat, but mummy was there and he was just groggy for a day . we went home that day. a one day procedure. PM me if you have any questions

[ashie]

thankyou so much! its nice to hear from someone who's had their little boy go through this too, hearing from another mother and what to expect and not through a doc or surgeon who's just preforming their duty IYKWIM.

he makes me laugh he has good aim wee'd on his daddys tooth brush in the shower! his winky was very swollen when he was born, and he wasnt allowed to be in a disposable until he wee'd which took 24hours. but now wee's as soon as its out. his winky would point up but as the swelling went down so did it, its sort of twisted sideways abit IYKWIM but his foreskin too is not formed underneath and doesnt cover the whole of top so i am hoping for circumsism. but its amazing how the doctors dont tell you much i suppose its up to the surgeons. but oh the thought of him under general and seeing him sore makes me feel so bad. i think he's perfect though, (should see some peoples faces when i've changed his bum, it really angered me that they would look down at him, you dont know their is a problem unless you see him without a nappy on, so i have become overly protective of him)

[ashie]

Double nappy system? I never heard of that. Could you tell me more about it please.
I think I might go out and buy him some new clothing this week maybe some pj onsies enough room for double nappy and he cannot get out of them.

[Traveller]

basically it involves a nappy with a hole cut out. His penis sticks out through the hole and there is another nappy on top. This way the poo is contained inside the first nappy and the wound is inside the second nappy with only urine. They may do it differently now but that's how they did it 3 years ago in Scotland when my son had his done.

[ashie]

That is so clever! Well fingers crossed they use that plan for him. Dh is going to chuckle but I think he'll find that brilliant too.
I have to ring up the night before for bed allocation I was told he'll be an over night patient but I think he'll relax more at home (he is a night owl won't fall asleep until late and has to watch one of us hop into bed next to him as he still shares a room with us.) I'll have to start packing his little bag for preparation of an overnight stay (ds1 cries too at ds3 staying in hospital the kids hate being separated)

[ashie]

Ds3 had his surgery last weds, was home Thursday.
All went well, did have a double nappy system!
Had his catherder out, and dressing taken off yesterday so his poor winky has swollen up again! It bled a bit too, which he said was normal but couldn't help but panic lol.
He has acted like its never happened though! Downside trying to keep little hands away, he is not liking not being able to touch. So far so good, another appt in 8 weeks hopefully everything will keep going well.
Nappy changes are hard he hates it screams and cries cause he knows it is sore he won't let anyone touch it now since getting the dressing off. Hard when he poops though!
He said it looks very good (must be from a surgical view, as from my view it looks very horrid from bruising and swelling) when do you know it will stay a success (I was told a 15% chance of coming undone and needing to be repaired again after 6 months of it happens)
Thankyou so much ladies for the support and help xx