My baby had a broken heart!

Wonderful news.

Regards,
Dianne

Glenny How is your gorgeous fighter boy going??

Charlie is doing well. He had the cannula taken out of his head yesterday and has his sutures removed as well. He has moved from continuous feeds to bolus feeds and is tolerating them well. Today he will move from being fed two hourly to three hourly and we'll see. It's all about stretching the stomach and seeing if he can tolerate full feeds at the moment. He hasn't had a full tummy for seven weeks! If today goes well we will try him on the boob tomorrow!!!!!!!!

The only slight hitch at the moment is the pneumothorax. Every time they clamp the chest drain in the hopes of removing it, the pocket reaccumulates. The surgeons are stumped. They are concerned there may be an air leak somewhere. Either damage to the airway from being intubated for so long or an accidental nick in the lungs or airway from surgery. Obviously we're hoping it's none of those but for now we're waiting.

Charlie isn't bothered though. He is spending lots of time awake now. Smiling and squirming!! ::):

Thanks for the update Glenny. Glad your little man is improving. Keep going strong little Charlie xoxo.

Nawww, glad to hear Charlie is going so well!

Glad Charlie is doing better x

Oh Glenny that is absolutely fabulous news!! YAY for a boobie feed soon too. Fingers crossed the surgeons can work out the pneunothorax.

Great news! Hope the pneumothorax resolves itself without surgery :hug:

Awesome update Glenny, so glad to hear he's doing good apart from the pneumathorax.. Hope that resolves soon :hug:

Amazing news - Go Charlie and Go Glenny!

It's wonderful he is doing so well! Thanks for keeping us updated - go Charlie!!!

Great to hear Glenny

Fantastic news. Charlie really is a little miracle!


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Great news.

Regards,
Dianne

That is fantastic news Glenny. Crossing everything his boobie feed tomorrow goes brilliantly for you both. It must be such a relief to finally see some smiles on your little man's face.

Great news!! What a fighter!!

Good luck with feeding xoxo

So glad things are improving. Keep fighting Charlie

Fantastic news :)

Wonderful wonderful news!! :happydance:

Oh he sounds like he's doing so well! How are you and your family doing with his hospital stay?

Wow, I've been away from bb for 3 weeks, and come back to see this fantastic news! Way to go Charlie, what a little fighter!

I've seen people who have had to have their tubes replaced, and they have recovered well afterwards. Fingers crossed the same can be said of Charlie soon.

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oh wow, that's fantastic! Thinking of you & Charlie having boobie feed, how wonderful!! :hug::hug::hug:

Hope the pneumothorax settles & behaves itself asap too.

I love hearing these updates Glenny. what a journey you guys have been on :hug:

How has little Charlie been doing Glenny?

Wow!!! What a couple of days we have had!!!! We are now out of close obs and on the main ward. This is a huge step towards going home and it means I can stay with him. Charlie has done amazingly well since surgery. He's a different baby!!!!!
-He is no longer on any oxygen support. Breathing air for two days now and doing really well.
-All drains are out. Last one came out on Friday and no signs of pneumothorax coming back. This is huge because they were starting to talk about more surgery!!
-I have been trying him on the boob since Friday. He is doing incredible for a baby that has been tube fed only for eight weeks! He has a real go, just has no strength behind his latch or suck. I am trying him on the boob now every feed and then topping up with the tube depending on how I think he's fed. Yesterday he had a full feed just from me!!! I didn't put anything down the tube out of curiosity and he slept three hours before wanting another feed!!!! He's so clever! I can't believe he remembers what to do!!
-Charlie was weighed this morning. He is now 5.04kgs!! That means he has put on 500gms since surgery three weeks ago!! Hoping we can start cutting down the fortifier in the tube feeds.
-I have started Charlie on a baby probiotic added to tube feeds and I will keep giving it when he's on the boob. He has had so many courses of antibiotics poor little thing!!

So- all good news!!!! This has been the longest two months of my life and I can finally see light at the end of the tunnel!!! Charlie is still being weaned off the methadone and other sedation so we are waiting for that to be off. Once the meds have reduced and the feeding is established we can go home!!!!! There's a bit of education we need regarding the drugs he's coming home on. He will be on warfarin for life which means blood tests every second day and keeping an eagle eye out for bleeding or bruising. We are having our first education session today and my parents are coming in for it as well. They haven't seem him since pre second surgery so I think they're in for a shock!!

Smiling all the way through this update. Can't believe how far he's come!!!!

I think you are all SO amazing. I can't wait for MY cuddle :)

Wow, what an amazing little man you have :D. And what an amazing Mum he has!

SO glad to hear things are going fantastically!!

Just amazing :) so glad to hear the great news !

Wow, wow, wow! Amazing news!

Fantastic news! Go Charlie!

So happy for you all, that's great news. 5kg's and b/feeding, what a champion.

Wow Charlie is so amazing!

Yay Glenny! Sounds like he is doing fantastic :D. Best of luck trying to get him to reattach.

Fabulous news Glenny! I hope he continues to go from strength to strength, well done Charlie!

Amazing news Glenny & Well done Charlie :)

That's wonderful news. Tears of happiness here :)

Wow Glenny, that's just awesome! I am so happy things are going well.. Lot os love to you and Your gorgeous boy! :hug:

This is just crazy beautiful news!! Go Charlie on the boob feeds too!!!

So happy to hear your news glenny, Charlie is just awesome!!!!! Go all the way little man!! xoxox