Glenny, I wish I could give you a hug right now. Im so sorry you are having to have these talks with the drs, talks no parent should have to have aboutr their children.
We keep you ,master Charlie and your family in our thoughts and prayers. Sending you much strength, love, and support xoxo
Oh Glenny I am so sorry you are having to deal with these decisions. You and your family are in my thoughts every day, I wish there was more I could do get
Oh glenny hugs. What a difficult decision. I'm sending my prayers that you make the right choice. Sending my thoughts to you, your DH and poor little Charlie.
Sent from HTC wildfire using TAPATALK, so forgive any spelling errors its a small keyboard.
Thinking of you as you deal with this heart wrenching time. No one should have to be faced with these kind of decisions about their children. Get all the information you can. Make lots of notes if you're not already. Get second opinions. During stress, we often miss details or forget things people just said to us.
We make the best decisions we can with the information we have at the time. No matter what decision you make, later there may be what ifs. This is normal and you'll deal with them at the time. Right now, take time to absorb as much information as you can whilst you're in shock. Sometimes we just have to make the decision to do the next thing, then make the decision to do the next thing, then the next, without knowing all the permutations and possibilities. You can't predict the future, so take all the expert advice, then make a decision based on what you know about your son.
Do you have support from any social workers? If so, is it any good? If you think they're not helping, ask for someone else. Counsellors can often sit in on meetings and help interpret medical speak into laymen's terms, if you need it.
Also, in case no one has mentioned this, Heartfelt are available to take photos of sick children, whatever the prognosis. The SW should be able to organise for you. They are very kind and sensitive.
I really wish you weren't dealing with this nightmare, but given you have no choice, I wish you resilience and strength. Lots of gentle, healing cuddles to little Charlie.
Bookmarks