I would definitely refer your brother and SIL to a Naturopath or Dietician for some sound advice regarding dietary changes. A Naturopath can also prescribe natural remedies to support your little nephews.
As the other lovely ladies have said, PKU isn't as scary as it sounds,
PKU is really manageable if it is found very early. It is one of the reasons they do the guthrie test. If left untreated it can cause a lot of damage to the body, however this rarely happens these days. A modified diet and he will be absolutely ok.
I think there are some support groups out there that give great information. GL
Thanks Nicole and ryatha SIL is still BF'ing the twins (they are only a month old now and go her for BF'ing!) so I am sure so far it's all good. I'll let them know about naturopaths and dieticians as well, they'll certainly need those services in the future if not now.
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