Just thought I'd add a post in here, and I hope it is ok with Tiff - I just know that a lot of you would be interested to hear how Ivy is getting on...
She has had three infusions of the IVIG so far. They are pretty tough for her little body to cope with, and often the nights following the infusions are rough for both Ivy and her mum and dad. Her reaction is strong and a little scary particularly within the first 24 hours I think.
However, it does seem to be helping her. She now has a 'care plan' and the most wonderful news is that she is enrolled and has been to orientation for preschool next year
Ivy still struggles with very serious ill health. There are no doubt many more battles to be overcome just yet. But she is such a strong girl, a real fighter. And her parents are the most amazing people I know.
Thanks again for your support, everyone. It has meant a lot.
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