Alot of people I have spoken to know of it but have no experience with it *sigh* He had the ultrasound yesterday afternoon so waiting on the report. And yes Goffy I have been accused of being a paranoid mother.. admittedly I was paranoid about BFing as I wasn't successful (lacked the proper support) with DS#1 who failed to thrive and therefore was anxious to know how much he weighed each week - hence the CHN telling me I was paranoid when I rang about the vomitting because he had had such HUGE gains and that I was overfeeding him which was making him vomit GRRRR if only I had trusted my mummy instinct straight away we may have had some answers already. So know just waiting by the phone........
Do let us know how the U/S report went. Being back at his birth weight after 3-4 weeks is not a good sign. I follow the Facebook Group on this and the story is so common. Positive side is - operating on a baby is no small thing, so wait and consider alternatives.
The easiest-to-spot signs for parents of PS babies are significant weight loss, puke without bile (greeny fluid from passing the liver), hunger immed after vomitting, no or minimally soiled nappies, lethargy, dehydration (no wet nappies, wrinked skin, sunken eyes if it gets that bad), visible muscle ripples over the stomach with vomitting, and "the pyloric olive" (the swollen muscle as a 2 cm firm lump) able to be seen or felt when the abdomen is relaxed (eg during feeding) - see the web for this kind of info.
Again, very very few babies die of PS or the surgery now, but it usually puts the parents through a rugged time and some infants have a few ongoing problems like reflux until they grow out of it.
The U/S did not show any signs of narrowing - so we are back to square one as to a cause.
He has most but not all of the symptoms:
*significant weight loss - he is beginning to look like a sharpea puppy with all the excess skin
*projectile vomit, no bile but blood a result from the constant vomitting thus tearing his stomach lining
*lucky to have a wet nappy per day but when he does it is blood stained
*more soiled nappies than wet but still not the one per change per feed that were consistant for the 1st 3 weeks
*lethergy - some days worse than others - acutally come to think of it it's a lathegic day followed by a bright eyed day - odd!?
*some partial signs of dehydration - his fontanelle is starting to sink but still passes the pinch test and has wet lips and mouth
but yet to notice the 'olive' but i am aware that it is a sign of PS
So frustrating... and scary! Off to the GP's soon and to the pead tomorrow... fingers crossed for some light being shed on our situation soon!!! I wasn't aware there was a facebook group (guess there's a group for everything now huh?!) will have to find it and see!
Thanks for the update. How difficult and frustrating for you guys. Having PS in your DS' genes must also a weigh on your minds. Keep your mind open when you see the ped... so often mum knows best when all's said and done. My reading says tests are sometimes wrong - either way. I'd be a bit reassured if his condition doesn't yet worry the ped enough to go beyond "wait and see". Thinking of you & glad we didn't have to go thru this with our kids.
Well turns out he did have PS - Paed requested another ultrasound which showed significant narrowing on Wednesday, he had surgery on Thursday and we got discharged yesterday! Seems to be recovering well but we have a few obsticles to face yet - no tummy time etc.. so possibly a few develomental delays BUT he is keeping down his feeds which is what matters most! Thanks for your support again..
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which is what matters most! Thanks for your support again..
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