Repolarisation Abnormality in Infants - Experiences? Advice?

[nickle730]

Hi Cassius, I don't know the background of your DD's condition and if you posted a thread about her having seizures I missed it. It is impossible to talk about a cardiac condition without knowing what it is. Has your DD had a halter monitor? Do any of your family have long QT (or the symptoms of it), as it is usually inherited? If your DD does have long QT, treatment with beta blockers is usually very effective. Although it is certainly not a desirable condition, there are several treatment options.

Who diagnosed a repolarisation problem? Was it a cardiologist or a doctor in A&E or on a general ward? Without a lot of experience, subtleties in ECG interpretation are notoriously difficult. Wait to see the cardiologist before you panic - very difficult I know! The cardiology department of the RCH are world renowned, as is the entire hospital. Your DD is in good hands. I have had both personal and professional dealings with them.

I suspect that the urgency for an appointment with a cardiologist is based on the fact that your DD has had seizures which may (MAY!) be related to a cardiac condition, as well as her age. If the doctor's who interpreted the ECG was convinced that your DD had a life threatening cardiac condition, I expect that your DD would have been transferred to RCH by ambulance and would be seen immediately. Deep breaths.... don't panic.

[Kazzo]

Oh gosh cassius, I had no idea your princess stowaway was having troubles. I have no help but wanted to let you know all my thoughts are with you all.

[Cassius2]

thanks guys for the hugs....this mama bear needs 'em lol.

will.not.panic.....much LOL.

Nickle: you are awesome! umm, i am 99% sure that it wasnt neurology that did the report. it *must* of been someone from ER? Even though on the night they said that it came back normal??

I have the referral in my hand (from our neuro) as of today and it reads: ECG reported as showing right ventricular hypertrophy and repolarisation abnormality.

There is no one, i believe that has the long qt thing....thank goodness! my aunty had a funky heart attack (apparently a rare kind...where the vessels come away from themselves?? that was ages ago and she was apparently lucky to survive....sorry cannot for the life of me remember what it was called...i am so technical right now lol).

her neurologist did say not to panic lol. i should just listen to him huh?