My 9 yr old brother has just been diagnosed with this. It is the size of a golf ball and is extremely noticable. Apparently it develops in utero and it needs to be removed by surgery.
It is sitting inbetween the 2 main arteries which is quite risky.

Has anyone elses child had this and can tell me more info and some positive outcome stories.

Send some positive vibes and his way please. Everyone is very worried about him. He has spent 2 nights in hospital this week. The poor little man.