Well what a journey we have been on! We went back into the doctors on the 25th jan... Luca decided to show the drs just how much he could vomit! Vomitting all over me.. again! After much discussion, i told the drs my thoughts, and he finally listened, agreeing with everything i was saying! So it was decided that luca would be admitted again that day, and would finally have a nasojajunel tube inserted. He would be on continuous feeds overnight, and breastfeeds during the day!!! Yay! Luca hadnt had a physical breastfeed since he was 6 weeks of age, just EBM.
All was going well, no vomiting once the tube was in, however he got a cold from one of the other babies, and also was not putting on weight, he was in fact losing weight.... After the doctors had meetings with all of the other paediatricians, everyone was still stumped! By the friday we were all getting a bit frustrated! Another discussion with one of luca's other doctors was lengthy, after he was once again convinced it was an allergy... after he left i thought about what were we doing different this time, to all of the other times luca had been in hosp....
Ding!!! He was being feed EBM in a bottle, thus we knew what volumes he was getting! So i proceeded to go ahead with my new plan, (drs telling the nurses that this was there new idea!) and bang 65gms over night!!!!! Unfortunetly the nurse on the sat night stuffed up his feeds, resulting in a very hungry little man, and by the monday he had put on 25gms on the sunday, then lots 15gms by the monday........ Once again angry drs on monday... after discussing what went on over the weekend, it was agreed we would give this new plan 1 more week. We went home on the tues, and luca had gained another 100gms overnight!
Well, we get home, and Luca gets Gastro! All he needed! Pulled out his tube by the friday, had it replaced with a temporary NGT, then pulled that out on sunday night! We had another drs appointment on the monday, less than a week after we left hosp. Luca had losts 55gms since the monday before, thanks to the gastro! the drs wanted to re admit him..... 5th time! After much pleeding we got another week at home! By the thurs he had gained 125gms, and last weigh in on monday he had gained 265gms in 1 wk!!! best ever!!! No vomiting either!
Needless to say, we are going well, he is rolling over, doing everything and more that a 4mth old baby should be doing! His just gorgeous! We are on a week to week basis, and hopefully looking at having the tube taken out in a couple of months, when he is back to the 25th percentile.. currently sitting on about the 2nd!
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