In my heart I feel I need to remove gluten too, but just get so heart broken when he does not eat for days even week. The test was meant to be in 4 months but he felt bad for all these needles. I'm inclined to do it a 4 months as he will also have his 4yr shots in 6 months so need to give him more time between them. Will see what peadi says next week. I'm not giving up on him. I need to feed him and he needs to thrive! I want to see him enjoy eating food, I want to see him just look and be more healthy. Right now he has a high fever which came on fast and tummy pain with vomiting well trying to as has empty tummy. Gp at medical center put him on antibiotics. Feel so bad for him. He has suffered so much already and hate when he picks up bugs from preschool. So far 2 days no sleep! I think we both will collapse soon just from exhaustion.
Some people have gluten intolerance, which means they can tolerate some amount of gluten (usually), but only a limited amount which might be very small. Coeliac though is different. It means that no gluten whatsoever can be tolerated and eating it will keep doing damage and will stop nutrients being absorbed. If your DS has coeliac and is still having gluten, giving him iron is not going to make much difference as he won't absorb it. He must stop all gluten now and forever. I find it very strange that doctor wouldn't tell you that - perhaps it's time for a new doctor. And definitely a dietician - this is really important to make sure you cut all the right things out, and still leave a nutritious, balanced diet.
An elimination diet is hard at first, but it gets easier. Once that's done, then you can see what happens to the iron levels and you might find supplementation isn't necessary anymore. It will probably be necessary for a little while until the levels have a chance to get to normal, but then with any luck he'll be fine.
Picked up supatone today. So he needs 8 sachets to get the dose he needs. Well I put 1 in his drink and he only drank 1/4 of it. I could taste it though when I tried it so do t know how successful it will be but will see how he goes. He is recovering from a nasty viral infection at the moment so not drinking too much of anything let alone eating.
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