So, we ended up in RCH on Sunday again and we are still here.
My daughter is still not eating very well. She is eating 2 weetbix for breakfast and then about 8-10 spoons of lunch/dinner and about 200ml of fluid per day (100 soy milk/100 water). Normally she eats 6 weetbix for breakfast and about 300-400 gms of food for lunch/dinner and 1lt of fluids per day.
The doctors have no idea why, we have had doctors, dentists, dieticians, psychologists and a social worker come to talk to us and we still have no idea why.
The pediatrician is thinking he will send us home tomorrow to see if she starts eating at home in her own environment but if she doesnt then we will be re-admitted on Monday.

They haven't done much testing besides talking and asking questions and making suggestions (which havent worked - the psychologists idea made it worse, every time they look in her mouth it gets worse)

I am still concerned about it (she lost 500gms in the first 3 days, 1kg between discharge on Saturday and re-admittion on Sunday) she hasn't continued to loose but she has not gained anything since admittion either. The doctors dont seam to be concerned and dont seam to be listening to my concerns.

Very frustrated at this stage and I dont know what to do. I am very concered about the long term effects of not eating and continual weight loss -gain-loss.

Sjl